Buetow Stephen, Giddings Lynne S, Williams Lisa, Nayar Shoba
Department of General Practice and Primary Health Care, University of Auckland, Private Bag, Auckland, New Zealand.
Parkinsonism Relat Disord. 2008 Aug;14(6):495-500. doi: 10.1016/j.parkreldis.2007.11.011. Epub 2008 Mar 3.
We surveyed nationwide health needs for Parkinson's disease (PD) among New Zealand Parkinson's Society members with PD.
Little literature assesses how people with PD perceive their health needs for this medical condition.
Cross-sectional survey of health needs through personal, structured telephone interviews with a random sample of 500 Parkinson's Society members with PD.
Many participants wanted improved access to specialist care but their reported attendance rates suggest provider adherence to guideline recommendations. More general practitioners (GPs) than specialists were said to offer less information than wanted. Getting enough information in usual care was the best predictor (odds ratio 3.44, 95% CI: 1.93-6.13, p=0.000) of seeing a specialist for PD as often as wanted.
People with PD have an important perspective in assessments of their health needs. GPs require training support in providing patient information about PD. Our study results may apply to Parkinson's Society members in similar health systems.
我们对新西兰帕金森病协会中患有帕金森病（PD）的成员进行了全国范围的健康需求调查。
很少有文献评估帕金森病患者如何看待他们针对这种病症的健康需求。
通过对500名患有帕金森病的帕金森病协会成员进行随机抽样，以个人结构化电话访谈的方式对健康需求进行横断面调查。
许多参与者希望能更方便地获得专科护理，但他们报告的就诊率表明医疗服务提供者遵循了指南建议。据说，与专科医生相比，更多的全科医生（GP）提供的信息少于患者期望。在常规护理中获得足够信息是按期望就诊帕金森病专科医生的最佳预测因素（优势比3.44，95%置信区间：1.93 - 6.13，p = 0.000）。
帕金森病患者在评估其健康需求方面有重要的观点。全科医生在为患者提供有关帕金森病的信息方面需要培训支持。我们的研究结果可能适用于类似医疗体系中的帕金森病协会成员。
