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1972 - 1988年新西兰唐氏综合征诊断的告知情况

Communication of the diagnosis of Down's syndrome in New Zealand, 1972-88.

作者信息

Murdoch J C

机构信息

University of Otago Medical School, Dunedin.

出版信息

N Z Med J. 1991 Aug 28;104(918):361-3.

PMID:1832489
Abstract

A postal questionnaire was sent to 117 mothers of Down's syndrome children born between 1972 and 1988 in New Zealand, and the response is compared to a similar study of 123 mothers in Scotland whose children were born between 1972 and 1981. Highly significant differences were found in the number of New Zealand children delivered by general practitioners and in the rate of breast feeding amongst New Zealand Down's syndrome children. Significant differences were also found in the later New Zealand cohort with respect to the mothers having seen a social worker, having been given literature and been given an appointment to see a paediatrician. In common with the Scottish study, only half of the mothers felt that their general practitioner or Plunket nurse had been helpful to them after the birth of their child. The implications of the results for the care of Down's syndrome children in New Zealand are discussed.

摘要

一份邮政调查问卷被寄给了1972年至1988年在新西兰出生的117名唐氏综合征患儿的母亲,并将调查结果与另一项针对1972年至1981年在苏格兰出生的123名患儿母亲的类似研究进行了比较。结果发现,新西兰由全科医生接生的患儿数量以及新西兰唐氏综合征患儿的母乳喂养率存在高度显著差异。在较晚的新西兰队列中,在母亲是否见过社会工作者、是否收到过相关资料以及是否预约看过儿科医生方面也发现了显著差异。与苏格兰的研究一样,只有一半的母亲认为她们的全科医生或普伦基特护士在孩子出生后对她们有帮助。文中讨论了这些结果对新西兰唐氏综合征患儿护理工作的启示。

相似文献

1
Communication of the diagnosis of Down's syndrome in New Zealand, 1972-88.1972 - 1988年新西兰唐氏综合征诊断的告知情况
N Z Med J. 1991 Aug 28;104(918):361-3.
2
Communication of the diagnosis of Down's syndrome and spina bifida in Scotland 1971-1981.1971 - 1981年苏格兰唐氏综合征和脊柱裂诊断的通报情况
J Ment Defic Res. 1983 Dec;27 (Pt 4):247-53.
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A survey of Down's syndrome under general practitioner care in Scotland.苏格兰全科医生护理下的唐氏综合征调查。
J R Coll Gen Pract. 1982 Jul;32(240):410-8.
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Uptake of postnatal services for mothers of newborn babies up to eight weeks of age.为出生后八周内新生儿母亲提供产后服务的情况。
N Z Med J. 1999 Oct 22;112(1098):395-8.
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Verbal and nonverbal interaction of mothers with their down's syndrome and nonretarded infants.母亲与唐氏综合征婴儿及发育正常婴儿之间的言语和非言语互动。
Am J Ment Defic. 1978 Jan;82(4):337-43.
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Comparison of the care of children with Down's syndrome with the care of matched controls.唐氏综合征患儿护理与配对对照组护理的比较。
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Feeding habits of children with Down's syndrome living in Riyadh, Saudi Arabia.居住在沙特阿拉伯利雅得的唐氏综合征患儿的饮食习惯。
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A descriptive account of New Zealand mothers' responses to open-ended questions on their breast feeding experiences.对新西兰母亲就其母乳喂养经历的开放式问题所做回答的描述性说明。
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Immediate post-natal management of the mothers of Down's syndrome and spina bifida children in Scotland 1971-1981.1971 - 1981年苏格兰唐氏综合征和脊柱裂患儿母亲的产后即时管理
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引用本文的文献

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Adoption and fostering of babies with Down syndrome: a cohort of 593 cases.唐氏综合征患儿的收养与寄养:593例队列研究
Prenat Diagn. 1998 May;18(5):437-45.