Murdoch J C
J Ment Defic Res. 1984 Mar;28 (Pt 1):67-72. doi: 10.1111/j.1365-2788.1984.tb01603.x.
A questionnaire completed by the mothers of 123 children with Down's syndrome and 109 children with Spina bifida born over the past 10 years in Scotland has shown that the majority of mothers were given either a poor outlook or no outlook at all for their children. Only a minority were referred to social workers while in hospital. The separation from their child shortly after birth is a significant factor in both groups of mothers particularly mothers of Spina bifida children, 61% of whom never saw their child during their stay in hospital. While 41% of Down's mothers received a visit from a parent of a Down's child only 16% of Spina bifida mothers were so visited. Two-thirds of those not offered such a visit would have welcomed one.
一份由123名唐氏综合征患儿和109名脊柱裂患儿的母亲填写的调查问卷显示，在过去10年于苏格兰出生的这些患儿的母亲中，大多数人得到的都是孩子预后不良或根本没有预后信息。住院期间只有少数人被转介给了社会工作者。两组母亲，尤其是脊柱裂患儿的母亲，孩子出生后不久就与她们分离是一个重要因素，脊柱裂患儿的母亲中有61%在住院期间从未见过自己的孩子。唐氏综合征患儿母亲中有41%得到过另一位唐氏综合征患儿家长的探访，而脊柱裂患儿母亲中只有16%得到过这样的探访。在未得到此类探访的人中，三分之二的人表示欢迎这样的探访。
