普拉德-威利综合征青少年危及生命肥胖的跨学科行为干预——一例报告
Interdisciplinary behavioral intervention for life-threatening obesity in an adolescent with Prader-Willi syndrome - a case report.
作者信息
Messersmith Natalie Vona, Slifer Keith J, Pulbrook-Vetter Valerie, Bellipanni Kimberly
机构信息
Pediatric Psychology Clinic and Consultation Service, Department of Behavioral Psychology, Kennedy Krieger Institute, Baltimore, Maryland 21205, USA.
出版信息
J Dev Behav Pediatr. 2008 Apr;29(2):129-34. doi: 10.1097/DBP.0b013e31815f24bd.
OBJECTIVE
To demonstrate interdisciplinary behavioral rehabilitation for life-threatening obesity in an adolescent female with Prader-Willi syndrome.
METHODS
Body Mass Index (BMI), supplemental oxygen requirement, mobility, and tantrums were documented. A 600 kcal per day diet, physical therapy, and exercise were implemented in an inpatient setting. A behavioral program was employed by an interdisciplinary team to ensure dietary adherence and to increase patient compliance with therapy demands. Family caregivers were trained and continued the intervention at home.
RESULTS
Important improvements were achieved and maintained including weight loss, decreased need for supplemental oxygen, greater exercise tolerance, and fewer tantrums. The patient's BMI decreased from 84.3 to 59.8 during inpatient treatment, and to 41.0 at last follow-up.
CONCLUSIONS
Behavioral rehabilitation can be beneficial and potentially life saving for morbidly obese children with Prader-Willi syndrome, and perhaps for other obese youth with developmental or behavioral problems.
目的
展示针对一名患有普拉德-威利综合征的青春期女性危及生命的肥胖症的跨学科行为康复治疗。
方法
记录体重指数（BMI）、补充氧气需求、活动能力和发脾气情况。在住院环境中实施每天600千卡的饮食、物理治疗和锻炼。一个跨学科团队采用了一个行为计划，以确保饮食依从性并提高患者对治疗要求的依从性。对家庭照顾者进行培训，并让他们在家中继续干预。
结果
取得并维持了重要改善，包括体重减轻、补充氧气需求减少、运动耐量增加和发脾气次数减少。患者的BMI在住院治疗期间从84.3降至59.8，在最后一次随访时降至41.0。
结论
行为康复对于患有普拉德-威利综合征的病态肥胖儿童可能有益且可能挽救生命，也许对其他有发育或行为问题的肥胖青少年也有益。
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