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姑息治疗专业人员对临终时营养与水化的看法。

Palliative care professionals' perceptions of nutrition and hydration at the end of life.

作者信息

van der Riet Pamela, Good Philip, Higgins Isabel, Sneesby Ludmilla

机构信息

School of Nursing and Midwifery, University of Newcastle, Australia.

出版信息

Int J Palliat Nurs. 2008 Mar;14(3):145-51. doi: 10.12968/ijpn.2008.14.3.28895.

Abstract

The provision of medically administered nutrition and hydration (MNH) for the terminally ill patient is a controversial issue and there has been much debate in the literature concerning this sensitive subject. This article reports on a qualitative research study that explores palliative care nurses' and doctors' perceptions and attitudes to patient nutrition and hydration at the end of life. Participants were from an urban and rural palliative care service. Three main discourses were identified: carers' distress at the non-provision of MNH; palliative care doctors' and nurses' position that terminal dehydration lessened the burden of suffering for dying patients; and polarisation between the acute care setting and the palliative care setting. Overlaying these three main discourses are contesting discourses involving cure vs comfort, and acute care vs palliative care. Importantly, the findings of this study reveal that palliative doctors and nurses believe that medically assisted nutrition and hydration at the end stage of life rarely benefits patients, and as long as adequate mouth care is given, patients do not suffer. However, family members do experience emotional distress in dealing with this situation. In caring for dying people, the nurse's and doctor's role is one of education and communication, involving a team approach to manage this difficult issue.

摘要

为晚期患者提供医疗营养与水分补充(MNH)是一个颇具争议的问题,文献中围绕这一敏感话题展开了诸多讨论。本文报告了一项定性研究,该研究探讨了姑息治疗护士和医生对临终患者营养与水分补充的看法及态度。参与者来自城乡姑息治疗服务机构。研究确定了三个主要话语:护理人员因未提供MNH而产生的痛苦;姑息治疗医生和护士认为终末期脱水减轻了临终患者的痛苦负担;以及急症护理环境与姑息治疗环境之间的两极分化。在这三个主要话语之上,存在着关于治愈与舒适、急症护理与姑息治疗的相互竞争的话语。重要的是,本研究结果表明,姑息治疗医生和护士认为临终阶段的医疗辅助营养与水分补充很少能使患者受益,并且只要给予足够的口腔护理,患者就不会受苦。然而,家庭成员在应对这种情况时确实会经历情感痛苦。在照顾临终患者时,护士和医生的角色是教育和沟通,需要采用团队协作的方式来处理这一难题。

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