Hayashi Akiko, Kayama Mami, Ando Kiyoshi, Ono Masafumi, Suzukamo Yoshimi, Michimata Akira, Akiyama Miki Onishi, Fukuhara Shunichi, Izumi Shin-Ichi
Department of Psychiatric & Mental Health Nursing, St. Luke's College of Nursing Psychiatric & Mental Health Nursing, Nagoya, Japan.
NeuroRehabilitation. 2008;23(2):159-69.
Few studies have revealed the impact of tele-coaching on patients with intractable diseases, including intractable neurological diseases. This study aimed to analyze and describe subjective evaluations of coaches and intervention subjects on the functions of tele-coaching intervention for patients with spinocerebellar degeneration. This qualitative descriptive study was conducted between December 2005 to July 2006. Immediately prior to data collection three experienced coaches had delivered individual 10 session semi-structured tele-coaching interventions to 24 subjects. Data from the 24 logs kept by coaches and individual interviews with the three coaches and nine patients were analyzed using a content analysis technique. Although patients' subjective evaluations varied, the themes that emerged from the data analysis were generally positive: that the tele-coaching enabled patients to tell their own stories in a daily-life setting, encouraged them to experience and adopt fresh points of view, and helped them to start working towards attainable goals without giving up. Our results indicate that it is especially important to encourage patients with intractable diseases to become aware of their latent desires and goals. For patients such as those with spinocerebellar degeneration the time frame for coaching interventions might be extended when required to accommodate treatment of their changing medical and mental condition.
很少有研究揭示远程指导对患有难治性疾病(包括难治性神经疾病)患者的影响。本研究旨在分析和描述指导者与干预对象对脊髓小脑性共济失调患者远程指导干预功能的主观评价。这项定性描述性研究于2005年12月至2006年7月进行。在数据收集之前,三名经验丰富的指导者对24名受试者进行了为期10节的个人半结构化远程指导干预。使用内容分析技术对指导者保存的24份记录以及对三名指导者和九名患者的个人访谈数据进行了分析。尽管患者的主观评价各不相同,但数据分析得出的主题总体上是积极的:远程指导使患者能够在日常生活环境中讲述自己的故事,鼓励他们体验并采用新的观点,并帮助他们朝着可实现的目标努力而不放弃。我们的结果表明,鼓励患有难治性疾病的患者意识到他们潜在的愿望和目标尤为重要。对于脊髓小脑性共济失调等患者,必要时可能需要延长指导干预的时间框架,以适应其不断变化的医疗和心理状况的治疗。