Halkett Georgia K B, Short Michala, Kristjanson Linda J
WA Centre for Cancer and Palliative Care, Curtin University of Technology, Perth, WA, Australia.
Radiother Oncol. 2009 Jan;90(1):153-9. doi: 10.1016/j.radonc.2008.05.017. Epub 2008 Jun 13.
Radiation therapy patients need information to make treatment decisions, understand treatment and manage side effects. The purpose of this study was to (1) Identify information about radiation therapy routinely provided to breast cancer patients; (2) Determine which health professionals provide information; (3) Examine whether information is routinely provided at the same time points; and (4) Determine whether health professionals and patients place similar importance on specific information.
Health professionals in radiation therapy departments in Australia and New Zealand completed self-administered questionnaires. Results were analysed and compared to patient responses from a previous study.
Forty-one of 52 departments participated in this survey. Information provision was inconsistent between departments in terms of how and when information was given. Although the types of information provided to patients appeared to align with patients' needs, health professionals and patients placed different levels of importance on specific information.
A wide range of information are provided to patients. However, the priority given to different information needs and the focus of information provision may not be optimal from the perspectives of patients. Further research needs to be conducted to determine patients' information needs and to develop specific information resources tailored to meet these needs.
放射治疗患者需要信息来做出治疗决策、理解治疗过程并应对副作用。本研究的目的是:(1)确定常规提供给乳腺癌患者的放射治疗信息;(2)确定哪些医疗专业人员提供信息;(3)检查信息是否在相同时间点常规提供;(4)确定医疗专业人员和患者对特定信息的重视程度是否相似。
澳大利亚和新西兰放射治疗科的医疗专业人员完成了自填式问卷。对结果进行分析,并与之前一项研究中的患者回复进行比较。
52个科室中有41个参与了此次调查。各科室在信息提供方式和时间方面不一致。尽管提供给患者的信息类型似乎与患者需求相符,但医疗专业人员和患者对特定信息的重视程度不同。
向患者提供了广泛的信息。然而,从患者的角度来看,对不同信息需求的优先级和信息提供的重点可能并非最佳。需要进行进一步研究以确定患者的信息需求,并开发满足这些需求的特定信息资源。