Department of Public Health and Primary Health Care, University of Bergen, Norway.
Bioethics. 2010 Feb;24(2):87-95. doi: 10.1111/j.1467-8519.2008.00672.x. Epub 2008 Jul 17.
In this paper, I address some of the shortcomings of established clinical ethics centring on personal autonomy and consent and what I label the Doctrine of Respecting Personal Autonomy in Healthcare. I discuss two implications of this doctrine: 1) the practice for treating patients who are considered to have borderline decision-making competence and 2) the practice of surrogate decision-making in general. I argue that none of these practices are currently aligned with respectful treatment of vulnerable individuals. Because of 'structural arbitrariness' in the whole process of how we assess decision-making competence, this area is open to disrespectful treatment of people. The practice of surrogate decision- making on the basis of a single person's judgment is arguably not consistent with ethical and political requirements derived from the doctrine itself. In response to the inadequacies of the doctrine, I suggest a framework for reasonableness in surrogate decision-making which might allow practice to avoid the problems above. I conclude by suggesting an extended concept of Patient Autonomy which integrates both personal autonomy and the regulative idea of morality that is required by reasonableness in deciding for non-competent others.
在本文中,我将讨论一些现有的以个人自主和同意为中心的临床伦理的缺点,以及我称之为医疗保健中尊重个人自主权的原则。我讨论了该原则的两个含义:1)对被认为具有边缘决策能力的患者的治疗实践,以及 2)一般情况下的代理决策实践。我认为,这些实践都不符合对弱势群体的尊重性治疗。由于我们评估决策能力的整个过程中的“结构性任意性”,这一领域容易受到对人们的不尊重待遇。基于个人判断的代理决策实践与源自该原则本身的伦理和政治要求不一致。为了应对该原则的不足,我建议在代理决策中采用合理性框架,以避免上述问题。最后,我提出了一个扩展的患者自主权概念,该概念将个人自主权和为非能力患者做决策所需的道德调节性思想相结合。