Fuller C, Hartley B
J Pediatr Nurs. 1991 Aug;6(4):251-7.
Once considered a rare, fatal illness in children and adolescents, systemic lupus erythematosus (SLE), or lupus, is now understood to be a relatively common chronic disorder in these age groups. This article provides a brief overview of the disease, describing its etiology, pathology, clinical manifestations, diagnosis, and treatment. A case history of an adolescent girl with lupus is presented, and the role of the nurse is discussed in relation to promoting four developmental tasks of adolescents: developing a positive body image, establishing a sexual identity, achieving independence, and acquiring formal thought processes. Since lupus interferes to some degree in the accomplishment of these tasks, we suggest methods of assessment and intervention that the nurse can use in each area to overcome these interferences.
系统性红斑狼疮(SLE),即狼疮,曾被认为是儿童和青少年中一种罕见的致命疾病,现在人们了解到它在这些年龄组中是一种相对常见的慢性疾病。本文简要概述了该疾病,描述了其病因、病理、临床表现、诊断和治疗。文中呈现了一名患狼疮的青春期女孩的病例史,并讨论了护士在促进青少年四项发展任务方面的作用:培养积极的身体形象、确立性别认同、实现独立以及获得形式思维过程。由于狼疮在一定程度上会干扰这些任务的完成,我们提出了护士可在每个领域用于克服这些干扰的评估和干预方法。