Van den Heuvel Ananda, Hollywood Amelia, Hogg Julie, Dormandy Elizabeth, Chitty Lyn, Kabra Madhulika, Ma Runmei, Masturzo Bianca, Marteau Theresa M
King's College London, Institute of Psychiatry, Department of Psychology at Guy's, Health Psychology Section, London, UK.
Prenat Diagn. 2008 Aug;28(8):727-34. doi: 10.1002/pd.1995.
To investigate whether prenatal screening for thalassemia is presented as a choice, and how the condition is described in written information given to pregnant women in different countries.
One leaflet from each of seven countries (UK, The Netherlands, Greece, Italy, Israel, India and China) was collected for evaluation. Statements relating to choice and those describing the condition were extracted for analysis.
The leaflets varied in length from 26 to 74 sentences (mean: 42). Overall, more sentences were devoted to describing the condition (mean: 5) than to conveying choice (mean: 2). Leaflets from Northern Europe contained the highest proportion of sentences relating to choice, while those from Italy and Israel contained none. The majority of sentences describing thalassemia were classified as negative. The leaflets from China and India contained the highest proportion of negative sentences and the leaflets from the Netherlands and Italy, the lowest.
For women to make an informed decision they need to be offered a choice and given balanced information regarding the condition for which screening is being offered. The results of this study raise doubts as to the extent to which prenatal services in many countries are facilitating informed choices.
调查地中海贫血的产前筛查是否作为一种选择提供，以及在不同国家提供给孕妇的书面信息中该疾病是如何描述的。
收集了七个国家（英国、荷兰、希腊、意大利、以色列、印度和中国）各自的一份宣传册进行评估。提取与选择相关的陈述以及描述该疾病的陈述进行分析。
宣传册的长度从26句到74句不等（平均：42句）。总体而言，用于描述该疾病的句子（平均：5句）比用于传达选择的句子（平均：2句）更多。北欧的宣传册中与选择相关的句子比例最高，而意大利和以色列的宣传册中则没有此类句子。大多数描述地中海贫血的句子被归类为负面。中国和印度的宣传册中负面句子的比例最高，而荷兰和意大利的宣传册中负面句子的比例最低。
为了让女性能够做出明智的决定，需要为她们提供选择，并给予关于所提供筛查疾病的平衡信息。这项研究的结果让人怀疑许多国家的产前服务在多大程度上促进了明智的选择。
