Bender L H
Orthop Nurs. 1991 Jul-Aug;10(4):23-32.
Osteogenesis imperfecta (OI), the most common genetic disorder of bone, is characterized by frequent, unpredictable fractures of the long bones with progressive skeletal deformity. Often diagnosed in the early years of life, OI requires a comprehensive, interdisciplinary plan of care involving patient, family, and community. The nurse's role as caregiver, educator, and patient advocate is to foster normal physical and psychosocial growth and development and minimize the opportunity for fracture.
成骨不全症(OI)是最常见的骨骼遗传性疾病,其特征是长骨频繁发生不可预测的骨折,并伴有进行性骨骼畸形。OI通常在生命早期被诊断出来,需要一个由患者、家庭和社区参与的全面、跨学科的护理计划。护士作为护理者、教育者和患者倡导者的角色是促进患者正常的身体和心理社会成长与发展,并尽量减少骨折的发生几率。