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选择参加癌症相关疲劳教育课程的癌症患者的心理社会特征。

Psychosocial characteristics of cancer patients who choose to attend an educational session on cancer-related fatigue.

作者信息

Alexeeva Iana, Thomas Bejoy Cherian, Pelletier Guy

机构信息

Department of Experimental Psychology, University of Oxford, Oxford, United Kingdom.

出版信息

Cancer Nurs. 2008 Sep-Oct;31(5):408-14. doi: 10.1097/01.NCC.0000305768.19604.ce.

Abstract

Little is known about cancer patients who seek specific educational interventions on cancer-related fatigue (CRF). The objectives of this study were (1) to describe the level of CRF, and emotional distress; social support; coping styles; and quality of life of patients who chose to attend a 1-hour educational session on CRF and (2) to examine the relationship between the selected demographic, psychosocial, and treatment-related variables and CRF. A questionnaire-based survey of 41 cancer patients who volunteered after a 1-hour education session on CRF at the Tom Baker Cancer Centre was conducted. The sample consisted mostly of married white women who lived in an urban environment. The average age was 56 years, and participants had an average of 14 years of education; 78% of the sample reported moderate to severe fatigue, 27% had significant levels of emotional distress, and 63% had a problematic coping style. Higher fatigue was associated with emotional distress, poorer quality of life, hopelessness, and reduced social support. To conclude, patients who self-refer to an educational session on CRF present a wide range of emotional difficulties and problematic coping styles. Therefore, educational sessions with patients with CRF should emphasize coping with emotional distress and building a support system.

摘要

对于寻求有关癌症相关疲劳(CRF)特定教育干预措施的癌症患者,我们了解甚少。本研究的目的是:(1)描述选择参加为期1小时CRF教育课程的患者的CRF水平、情绪困扰、社会支持、应对方式和生活质量;(2)研究选定的人口统计学、心理社会和治疗相关变量与CRF之间的关系。在汤姆·贝克癌症中心对41名在参加为期1小时的CRF教育课程后自愿参与的癌症患者进行了问卷调查。样本主要由居住在城市环境中的已婚白人女性组成。平均年龄为56岁,参与者平均受教育年限为14年;78%的样本报告有中度至重度疲劳,27%有显著水平的情绪困扰,63%有问题应对方式。较高的疲劳与情绪困扰、较差的生活质量、绝望感以及社会支持减少有关。总之,自行报名参加CRF教育课程的患者存在广泛的情绪困扰和问题应对方式。因此,针对CRF患者的教育课程应强调应对情绪困扰和建立支持系统。

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