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单亲家庭中孩子患癌症时家长对家庭资源的体验。

Parental experience of family resources in single-parent families having a child with cancer.

作者信息

Huang I-Chen, Mu Pei-Fan, Chiou Tzeon-Jye

机构信息

Institute of Clinical Nursing, National Yang-Ming University, Taipei, Taiwan.

出版信息

J Clin Nurs. 2008 Oct;17(20):2741-9. doi: 10.1111/j.1365-2702.2008.02447.x.

Abstract

AIM

The purpose of this study was to explore the essence of family experiences in terms of family resources and how these assist a single-parent caring for a child with cancer.

BACKGROUND

When families face stresses caused by cancer, they need to readjust their roles, interactive patterns and relationships, both inside and outside the family. During the adaptation process, family resources may assist recovery from stress and a return to equilibrium. Most research has emphasised the support resources available to two-parent families during the treatment process. There is a lack of information on the experiences of single-parent families and their available resources together with the functions and roles played by family resources during the adjustment process.

DESIGN

Qualitative.

RESULTS

Five major themes were identified: (i) facing the disease with courage; (ii) hope kindled by professionals; (iii) constructing parental role ability; (iv) assisting the children to live with the illness; and (v) family flexibility.

CONCLUSION

The results of the current study demonstrate that single-parent families with a child suffering from cancer employ family resources to assist family adjustment and to maintain family function/equilibrium. These results explain the dynamic interactions between the multiple levels of resources available to the family.

RELEVANCE TO CLINICAL PRACTICE

The study results provide evidence-based information that identifies the nature of family resources in single-parent families and describes how these resources can be applied to assist the families.

摘要

目的

本研究旨在从家庭资源的角度探索家庭经历的本质,以及这些资源如何帮助单亲家长照顾患癌儿童。

背景

当家庭面临癌症带来的压力时,他们需要重新调整家庭内部和外部的角色、互动模式及关系。在适应过程中,家庭资源可能有助于从压力中恢复并回归平衡。大多数研究都强调了双亲家庭在治疗过程中可获得的支持资源。关于单亲家庭的经历、他们可利用的资源以及家庭资源在调整过程中所发挥的功能和作用,相关信息匮乏。

设计

定性研究。

结果

确定了五个主要主题:(i)勇敢面对疾病;(ii)专业人员点燃的希望;(iii)构建父母角色能力;(iv)帮助孩子与疾病共存;(v)家庭灵活性。

结论

本研究结果表明,有患癌子女的单亲家庭利用家庭资源来协助家庭调整并维持家庭功能/平衡。这些结果解释了家庭可获得的多层次资源之间的动态相互作用。

与临床实践的相关性

研究结果提供了基于证据的信息,明确了单亲家庭中家庭资源的性质,并描述了如何应用这些资源来帮助家庭。

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