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当母亲患有乳腺癌时:青春期女儿的被养育经历。

When mom has breast cancer: adolescent daughters' experiences of being parented.

作者信息

Stiffler Deborah, Barada Brooke, Hosei Barbara, Haase Joan

机构信息

The School of Nursing, Indiana University, Indianapolis, Indiana, USA. dstiffle@iupui

出版信息

Oncol Nurs Forum. 2008 Nov;35(6):933-40. doi: 10.1188/08.ONF.933-940.

Abstract

PURPOSE/OBJECTIVES: To examine the experiences of being parented when mothers are diagnosed and treated for breast cancer from the perspectives of adolescent daughters.

RESEARCH APPROACH

Empirical phenomenologic.

SETTING

Participants were recruited from sites in Indiana and Arizona.

PARTICIPANTS

Eight adolescent daughters whose mothers had been diagnosed with and treated for breast cancer. Ages of the adolescent daughters at the time of diagnosis ranged from 10-15, with an average age of 13.5 years. Ages at the time of the interview ranged from 13-24 years.

METHODOLOGIC APPROACH

An open-ended, audiotaped interview was conducted with each daughter.

FINDINGS

8 major themes were found: A World Turned Upside Down, Stop the Intrusion--Need to Get Away--Reluctant to Leave, Mom Can't Die, A Hole Where Mom Used to Be, Filling in the Hole Where Mom Used to Be, Being There for Mom--Managing Mom, Managing My Reactions--Being Selfish or Difficult, and Guarded Relief.

CONCLUSIONS

The daughters were struggling with changes going on in their lives. They found themselves in reversed roles with their mothers and felt conflicted between meeting their mothers' needs and their own. Daughters required help in communicating their needs to their mothers and others.

INTERPRETATION

Nurses can assist adolescent daughters of mothers with breast cancer to find useful information, discuss effective ways of communicating, and facilitate the use of positive coping mechanisms.

摘要

目的/目标:从青春期女儿的视角审视母亲被诊断患有乳腺癌并接受治疗期间女儿们为人子女的经历。

研究方法

实证现象学研究。

研究地点

参与者从印第安纳州和亚利桑那州的一些场所招募。

参与者

八名母亲被诊断患有乳腺癌并接受治疗的青春期女儿。诊断时,这些青春期女儿的年龄在10至15岁之间,平均年龄为13.5岁。访谈时的年龄在13至24岁之间。

研究方法

对每个女儿进行了开放式录音访谈。

研究结果

发现了8个主要主题:天翻地覆的世界、阻止侵扰——需要逃离——不愿离开、妈妈不能死、妈妈曾经所在之处的空洞、填补妈妈曾经所在之处的空洞、陪伴妈妈——照顾妈妈、控制我的反应——自私或难相处、以及如释重负。

结论

女儿们在应对生活中的变化时苦苦挣扎。她们发现自己与母亲的角色颠倒了,并且在满足母亲需求和自身需求之间感到矛盾。女儿们在向母亲和他人表达自己的需求方面需要帮助。

解读

护士可以帮助患有乳腺癌母亲的青春期女儿找到有用信息,讨论有效的沟通方式,并促进积极应对机制的运用。

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