Biering-Sørensen T, Hansen R B, Biering-Sørensen F
Clinic for Spinal Cord Injuries, The NeuroScience Centre, Rigshospitalet, University of Copenhagen, Hornbaek, Denmark.
Spinal Cord. 2009 May;47(5):405-12. doi: 10.1038/sc.2008.132. Epub 2008 Nov 11.
Assessment of home aids, adaptations and personal assistance received after traumatic spinal cord injury (SCI).
Clinic for Spinal Cord Injuries, Denmark. Uptake area, 2.5 million inhabitants.
Cross-sectional follow-up with retrospective data from medical files.
Individuals with traumatic SCI before 1 January 1991, still in regular follow-up and with sufficient medical record. In all, 279 were included, and 236 answered the questionnaire (193 men and 43 women), with a response rate of 84.6%. Mean age at follow-up was 50.5 years, and mean follow-up time, 24.1 years. One hundred and twenty-six were paraplegic and 110, tetraplegic. Responders and non-responders were comparable.
Most common aids or adaptations reported were commode/shower chair on wheels or a seat (69%), grab bar by the toilet (41%), electrical bed (44%), special mattress (28%), lift/hoist (20%), computers (39%) and kitchen tools or cutlery with special handles (14%). In all, 7.6% of the participants reported no aids. Eighty-two percent answered 'Yes' to the question 'Have the aids, you currently or previously needed, been available to you?' The majority reported that their source of information about aid had been various journals and magazines. Twenty-one percent had personal helpers, with 60 h per week in median (range 2-168). Thirty-three percent received domestic help with 2.5 h per week in median (range 0.5-37). Eight percent had a home nurse. A total of 98.7% were living in their own homes.
This is the first study of a representative SCI population giving information on home aids. Individuals with SCI in Denmark seem to be sufficiently supplied with aids and personal assistance.
评估创伤性脊髓损伤（SCI）后所接受的家用辅助器具、适应性改造及个人护理服务。
丹麦脊髓损伤诊所。服务覆盖地区有250万居民。
采用横断面随访，回顾医疗档案中的数据。
1991年1月1日前发生创伤性SCI且仍在定期随访并有足够病历的个体。共纳入279例，236例回答了问卷（193名男性和43名女性），应答率为84.6%。随访时的平均年龄为50.5岁，平均随访时间为24.1年。其中126例为截瘫患者，110例为四肢瘫患者。应答者与未应答者具有可比性。
报告的最常见辅助器具或适应性改造包括带轮便桶/淋浴椅或座椅（69%）、马桶旁扶手（41%）、电动床（44%）、特殊床垫（28%）、升降设备（20%）、电脑（39%）以及带特殊把手的厨房工具或餐具（14%）。总计7.6%的参与者表示未使用辅助器具。82%的人对“您目前或之前所需的辅助器具是否可得？”这一问题回答“是”。大多数人报告称其辅助器具信息来源是各类期刊和杂志。21%的人有私人护理员，每周护理时长中位数为60小时（范围为2 - 168小时）。33%的人接受家政服务，每周家政服务时长中位数为2.5小时（范围为0.5 - 37小时）。8%的人有家庭护士。总共98.7%的人居住在自己家中。
结论；这是第一项针对具有代表性的脊髓损伤人群提供家用辅助器具信息的研究。丹麦的脊髓损伤患者似乎获得了充足的辅助器具和个人护理服务。
