Rosman S
INSERM U 750- CERMES, 7 rue Guy Môquet, Villejuif Cedex, France.
Eur J Cancer Care (Engl). 2009 Jan;18(1):28-36. doi: 10.1111/j.1365-2354.2007.00863.x. Epub 2008 Oct 22.
This article analyses the experience of former cancer patients who, many years after the treatment of their illness, suffer from 'extreme persistent fatigue'. The aim is to demonstrate how this symptom can be experienced as problematic and to detail coping strategies that individuals use in order to live with it. This qualitative exploratory study took place in the Netherlands and was based on semi-structured interviews with 12 former cancer patients suffering from extreme fatigue 7-10 years after their illness was treated. The aim of the informants is to achieve a medical diagnosis of cancer-related fatigue, which increases their chances of receiving care and understanding, and thus gives a social and medical legitimacy to their suffering. The search for legitimacy appeared to be especially evident in the demands for disability allowances. Counselling and care in cancer patients should be more focused on the prevention of persistent fatigue during and after cancer diagnosis and treatments.
本文分析了曾经患癌的患者的经历，他们在疾病治疗多年后，遭受着“极度持续疲劳”的折磨。目的是展示这种症状如何被体验为有问题的，并详细说明个体为与之共存而采用的应对策略。这项定性探索性研究在荷兰进行，基于对12名曾患癌症的患者的半结构化访谈，这些患者在疾病治疗7至10年后患有极度疲劳。受访者的目的是获得与癌症相关疲劳的医学诊断，这增加了他们获得护理和理解的机会，从而赋予他们痛苦以社会和医学上的合法性。对合法性的寻求在残疾津贴申请中似乎尤为明显。癌症患者的咨询和护理应更侧重于预防癌症诊断和治疗期间及之后的持续疲劳。
