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台湾儿童癌症相关疲劳的经历。

The experience of cancer-related fatigue in Taiwanese children.

作者信息

Chiang Y-C, Yeh C-H, Wang K-W K, Yang C-P

机构信息

Department of Nursing, Chang Gung Institute of Technology, 259 Wen-Hwa 1 Road, Kwei-San, Tao-Yuen, Taiwan.

出版信息

Eur J Cancer Care (Engl). 2009 Jan;18(1):43-9. doi: 10.1111/j.1365-2354.2007.00884.x. Epub 2008 Oct 22.

Abstract

The purpose of this study was to describe the experience of cancer-related fatigue in children of different ages in Taiwan. A total of 17 children with different stages of cancer were interviewed. The methods of data collection included interviews, participants' observations, medical chart reviews and the researcher's reflexive journals. Data were progressively analysed by using qualitative data analysis method throughout the process of data collection. The results indicated that children in all age groups used the word 'tiredness' or 'weary' instead of 'fatigue'. Patients in different age groups described the fatigue differently. Younger children (<9 years) reported that fatigue affected their ability to participate in physical activities. Children aged 10-12 years described fatigue as extreme tiredness that affected their daily lives both physically and psychosocially by altering their daily routine and school attendance and performance. Adolescents described fatigue as unrelievable tiredness that differed from normal tiredness and had a great impact on physical and psychosocial aspect, particularly altering their future life plans and self-performance. This study shows that the definition and impact of fatigue differs among children by age group. Defining and understanding the effects of fatigue can help clinicians assess fatigue and implement effective strategies to alleviate it.

摘要

本研究旨在描述台湾不同年龄段儿童癌症相关疲劳的体验。共访谈了17名处于不同癌症阶段的儿童。数据收集方法包括访谈、参与者观察、病历审查以及研究者的反思日志。在数据收集过程中,采用定性数据分析方法对数据进行逐步分析。结果表明,所有年龄组的儿童都使用“疲倦”或“疲惫”一词而非“疲劳”。不同年龄组的患者对疲劳的描述有所不同。年龄较小的儿童(<9岁)报告称,疲劳影响了他们参与体育活动的能力。10至12岁的儿童将疲劳描述为极度疲倦,这种疲倦通过改变他们的日常生活、上学出勤率和成绩,在身体和心理社会方面都对他们的日常生活产生了影响。青少年将疲劳描述为无法缓解的疲倦,这种疲倦不同于正常的疲倦,对身体和心理社会方面都有很大影响,尤其是改变了他们未来的生活计划和自我表现。本研究表明,疲劳的定义和影响在不同年龄组的儿童中有所不同。明确并理解疲劳的影响有助于临床医生评估疲劳情况并实施有效的缓解策略。

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