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患有儿童期脊髓损伤的成年人生活满意度的变化。

Change in life satisfaction of adults with pediatric-onset spinal cord injury.

作者信息

Chen Yuying, Anderson Caroline J, Vogel Lawrence C, Chlan Kathleen M, Betz Randal R, McDonald Craig M

机构信息

Spain Rehabilitation Center, University of Alabama at Birmingham, Birmingham, AL 35249-7330, USA.

出版信息

Arch Phys Med Rehabil. 2008 Dec;89(12):2285-92. doi: 10.1016/j.apmr.2008.06.008.

DOI:10.1016/j.apmr.2008.06.008
PMID:19061740
Abstract

OBJECTIVES

To examine the change in life satisfaction over time and potential contributing factors among adults with pediatric-onset spinal cord injury (SCI).

DESIGN

Prospective dynamic cohort study.

SETTING

Community.

PARTICIPANTS

Individuals who sustained a SCI before age 19 years (N=278) were initially interviewed at age 24 years or older and followed on an annual basis between 1996 and 2006.

INTERVENTIONS

Not applicable.

MAIN OUTCOME MEASURES

A structured telephone interview was conducted to obtain the measures of Satisfaction with Life Scale (SWLS), physical independence, participation, and psychologic functioning. The hierarchical linear modeling was performed to characterize individual person-specific time paths and estimate the average rate of change in SWLS over time.

RESULTS

A total of 1171 interviews were conducted among 184 men and 94 women (89% white; baseline age, 27.1+/-3.4 y; baseline years since injury, 12.8+/-4.9). The initial SWLS score averaged 24.2 and was estimated to increase by 0.14 a year (P=.10). After adjusting for potential confounding factors, the overall life satisfaction was significantly higher for women and those who were married/living with a partner; were employed/students; did not use illicit drugs; and scored high in the FIM, the mental health component of the Short Form-12, and the social integration subscale of the Craig Handicap Assessment and Reporting Technique. The rate of change in life satisfaction did not differ significantly by any personal, medical, and psychosocial characteristics under investigation.

CONCLUSIONS

The study findings suggest that people who feel unsatisfied with life initially are likely to stay unsatisfied over time if the critical determinant factors remain unchanged in their life. To minimize the risk of decreasing life satisfaction, several modifiable risk factors identified in the present study could be targeted for intervention.

摘要

目的

探讨小儿期脊髓损伤(SCI)成人患者生活满意度随时间的变化及潜在影响因素。

设计

前瞻性动态队列研究。

地点

社区。

参与者

19岁之前发生脊髓损伤的个体(N = 278),最初在24岁及以上接受访谈,并在1996年至2006年期间每年随访。

干预措施

不适用。

主要观察指标

进行结构化电话访谈,以获取生活满意度量表(SWLS)、身体独立性、参与度和心理功能的测量值。采用分层线性模型来描述个体特定的时间路径,并估计SWLS随时间的平均变化率。

结果

共对184名男性和94名女性进行了1171次访谈(89%为白人;基线年龄,27.1±3.4岁;基线受伤后年限,12.8±4.9年)。初始SWLS评分平均为24.2,估计每年增加0.14(P = 0.10)。在调整潜在混杂因素后,女性以及已婚/与伴侣同居者、就业/学生、不使用非法药物者,以及在FIM、简短健康调查问卷12项的心理健康部分和克雷格残疾评估与报告技术的社会融合子量表中得分较高者的总体生活满意度显著更高。生活满意度的变化率在任何所调查的个人、医学和社会心理特征方面均无显著差异。

结论

研究结果表明,如果生活中的关键决定因素保持不变,最初对生活不满意的人随着时间推移可能仍会不满意。为了将生活满意度下降的风险降至最低,可以针对本研究中确定的几个可改变的风险因素进行干预。

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