Behringer Bruce, Mabe Karen Harrell, Dorgan Kelly A, Hutson Sadie P
Office of Rural and Community Health and Community Partnerships, East Tennessee State University, PO Box 70412, Johnson City, TN 37614, USA.
Prev Chronic Dis. 2009 Jan;6(1):A34. Epub 2008 Dec 15.
Underserved communities with high cancer rates often are not involved in implementing state cancer control activities locally. An East Tennessee State University research team formed 2 Appalachian Community Cancer Research Review Work Groups, 1 in northeast Tennessee and 1 in southwest Virginia. During 4 sessions, the research team presented regional cancer data to the work groups. Work group participants explored research from a lay perspective and identified possible reasons for cancer disparities in central Appalachia. The fifth session was a community dissemination activity in which work group participants engaged in cancer education and action by presenting the research to their local communities in unique ways. During a sixth session, both work groups discussed these interventions and further attempted to answer the question, "What makes the experience of cancer unique in Appalachia?" This article describes the key steps of this community-based participatory research process.
癌症发病率高但医疗服务不足的社区往往未参与在当地实施州级癌症控制活动。东田纳西州立大学的一个研究团队组建了两个阿巴拉契亚社区癌症研究审查工作组,一个位于田纳西州东北部,另一个位于弗吉尼亚州西南部。在4次会议期间,该研究团队向工作组展示了区域癌症数据。工作组成员从普通民众的角度探讨了研究,并确定了阿巴拉契亚中部地区癌症差异的可能原因。第五次会议是一次社区传播活动,工作组成员通过以独特方式向当地社区展示研究成果,参与了癌症教育和行动。在第六次会议期间,两个工作组讨论了这些干预措施,并进一步试图回答“是什么使得阿巴拉契亚地区的癌症经历独一无二?”这一问题。本文描述了这一基于社区的参与性研究过程的关键步骤。