Ellis-Hill C, Robison J, Wiles R, McPherson K, Hyndman D, Ashburn A
School of Health Professions and Rehabilitation Sciences, University of Southampton, UK.
Disabil Rehabil. 2009;31(2):61-72. doi: 10.1080/09638280701775289.
In this paper we aim to develop the understanding of what constitutes a 'good' or 'poor' experience in relation to the transition from hospital to home following a stroke.
Semi-structured interviews were carried out with 20 people and 13 carers within one month of being discharged from hospital following a stroke. Interviews covered views of mobility recovery and support from therapy and services. Interviews were transcribed verbatim, coded and analysed in depth in order to explore the discharge process.
Participants described models of recovery, which involved a sense of momentum and getting on with their life. Discharge was successful if: (i) This sense of momentum was maintained, (ii) they felt supported, and (iii) they felt informed about what was happening. Discharge was seen as difficult when: (a) Momentum was perceived to be lost, (b) people did not feel supported, or (c) they felt in the dark about the plans or their recovery.
The discharge experience could be improved by healthcare professionals understanding and exploring patients' individual models of recovery. This would allow professionals to: (a) Access patients concerns, (b) develop programmes addressing these, (c) correct misinterpretations, (d) keep people fully informed, and (e) share and validate the experience, to reduce their sense of isolation.
在本文中，我们旨在加深对中风后从医院过渡到家庭过程中，何种体验被视为“良好”或“糟糕”的理解。
对20名患者及13名护理人员在中风出院后一个月内进行了半结构化访谈。访谈内容涵盖了对行动能力恢复的看法以及来自治疗和服务方面的支持。访谈内容逐字转录、编码并深入分析，以探究出院过程。
参与者描述了恢复模式，其中包括一种动力感以及继续生活的状态。若满足以下条件，则出院是成功的：（i）这种动力感得以维持，（ii）他们感到得到了支持，（iii）他们了解正在发生的事情。若出现以下情况，则出院被视为困难：（a）动力感丧失，（b）人们感觉未得到支持，或（c）他们对计划或自身恢复情况一无所知。
医疗保健专业人员若能理解并探究患者的个体恢复模式，出院体验有望得到改善。这将使专业人员能够：（a）了解患者的担忧，（b）制定针对这些担忧的方案，（c）纠正误解，（d）让人们充分了解情况，以及（e）分享并确认这种体验，以减轻他们的孤立感。
