DiLorenzo Terry A, Becker-Feigeles Jill, Halper June, Picone Mary Ann
Stern College for Women, Yeshiva University, 245 Lexington Avenue, New York, NY 10016, USA.
Disabil Rehabil. 2008;30(15):1088-97. doi: 10.1080/09638280701464256.
This qualitative investigation was designed to identify themes that underlie adaptation in older individuals with multiple sclerosis (MS).
Thirteen individuals (age 60 and above) with MS were recruited from an MS Comprehensive Care Centre and local chapters of the National Multiple Sclerosis Society. Participants completed The Perceptions of Aging Interview by telephone. This open-ended interview was developed to explore two lines of inquiry: MS: Perceptions of Aging, which was based on the literature on adaptation in MS, and Life Strengths, which was adapted from Kivnick's Life Strengths Inventory.
The majority of participants reported having adapted to MS and aging. They described several themes and subthemes that seemed to influence their levels of adaptation: Social comparisons, mobility/independence, integration of MS into self-identity, acceptance, pacing and planning, finding meaning/cognitive reframing, social support, religion/spirituality and generativity.
The themes identified in this investigation are generally supported by the literatures on adaptation to MS and adaptation to aging. However, this is the first study to examine these factors in an older MS sample. Moreover, many of these themes are potentially modifiable through clinical intervention, and should be examined in future research with this population.
本定性研究旨在确定多发性硬化症(MS)老年患者适应过程背后的主题。
从一个MS综合护理中心和国家多发性硬化症协会的地方分会招募了13名年龄在60岁及以上的MS患者。参与者通过电话完成了《衰老认知访谈》。这个开放式访谈旨在探索两条调查线索:基于MS适应文献的《MS:衰老认知》,以及改编自基夫尼克的《生活优势量表》的《生活优势》。
大多数参与者报告称已经适应了MS和衰老。他们描述了几个似乎影响其适应水平的主题和子主题:社会比较、行动能力/独立性、将MS融入自我认同、接纳、节奏与规划、寻找意义/认知重构、社会支持、宗教/精神性和繁衍力。
本研究中确定的主题总体上得到了关于适应MS和适应衰老的文献的支持。然而,这是第一项在老年MS样本中研究这些因素的研究。此外,这些主题中的许多都有可能通过临床干预进行调整,应在未来针对该人群的研究中进行检验。