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[与处于精神病早期阶段的家庭合作:对照顾者的结构化干预]

[Working with families in the early stages of psychosis: a structured intervention for caregivers].

作者信息

Alpi A, Cocchi A, Meneghelli A, Pafumi N, Patelli G

机构信息

Programma 2000, Azienda Ospedaliera Ospedale Niguarda Ca' Granda, Via Livigno3, 20158, Milano.

出版信息

G Ital Med Lav Ergon. 2008 Jul-Sep;30(3 Suppl B):B62-70.

Abstract

In the field of early psychosis psychoeducation is considered fundamental to increase coping skills with diseases and to improve the quality of life of patients and their families. The more recent and updated guidelines on schizophrenia underline the extreme importance of the families involvement in treatment of young people in the initial phases of illness. "Families are the main support for many young patients. They could be the primary carers but they have also to face individual and social consequences following the onset course. Where feasible, family members must be involved in the treatment". This work describes the components of the work with families carried on by the Centre for the early detection of psychoses and high-risk situations--Programma 2000 ("Niguarda Ca' Granda" Hospital-Milan) and is mostly focused on psychoeducation and on Expressed Emotions aspects. Even the advances suggested by the international literature drove Programma 2000 to define both the steps of caregivers assessment and intervention. During the last ten years, Programma 2000 has followed 191 caregivers. Aims of this work is to verifier the outcome of the "pilot project", started in 2007, projected specifically to increase the normally used strategies to improve the caregivers adherence and involvement in the therapeutic process. The individualized multi-componential intervention has been structured in 8 session over one years. Outcome measures used in this article are the scores of the Camberwell Family Interview and from the Psychosis Knowledge Assessement Semistructured Interview (VCP). The subjects enrolled in the structured pilot project were 25 family caregiver to young (18-30 yrs old) patients. Results shows change in the Expressed Emotion level: 13% of families moved from High Expressed Emotion to Low Expressed Emotion. Furthermore data on the knowledge of illness knowledge level illustrate a reduction in the percentage, from 47% to 18%, of carers who have just a very vague knowledge of illness, and an increase from 16% to 27% of carers who obtain a good level of specific knowledge. In conclusion we can sustain mental health expert with aim to treatment project programme individualized and multi-componential tailored for young's caregiver at the onset phase of psychosis.

摘要

在早期精神病领域,心理教育被认为是提高应对疾病能力以及改善患者及其家庭生活质量的基础。最新的精神分裂症指南强调了家庭在疾病初期对年轻人治疗的参与的极端重要性。“家庭是许多年轻患者的主要支持力量。他们可能是主要照顾者,但也必须面对疾病发作过程带来的个人和社会后果。在可行的情况下,家庭成员必须参与治疗”。这项工作描述了精神病和高风险情况早期检测中心——2000计划(米兰“尼瓜尔达·卡格兰达”医院)与家庭开展的工作内容,主要集中在心理教育和情感表达方面。国际文献提出的进展也促使2000计划确定了照顾者评估和干预的步骤。在过去十年中,2000计划跟踪了191名照顾者。这项工作的目的是验证2007年启动的“试点项目”的成果,该项目专门设计用于增加常用策略,以提高照顾者对治疗过程的依从性和参与度。个体化的多成分干预在一年的时间里分8次进行。本文使用的结果测量指标是坎伯韦尔家庭访谈和精神病知识评估半结构化访谈(VCP)的得分。参与结构化试点项目的受试者是25名年轻(18 - 30岁)患者的家庭照顾者。结果显示情感表达水平发生了变化:13%的家庭从高情感表达转变为低情感表达。此外,关于疾病知识水平的数据表明,对疾病仅有非常模糊认识的照顾者比例从47%降至18%,而获得良好特定知识水平的照顾者比例从16%增至27%。总之,我们可以为心理健康专家提供支持,目标是为精神病发作初期的年轻照顾者制定个体化、多成分的治疗项目方案。

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