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“是半满还是半空?”对慢性病的情感反应。

"Is it half full or half empty?" Affective responses to chronic illness.

作者信息

Silverman Myrna, Nutini Jean, Musa Donald, Schoenberg Nancy E, Albert Steven M

机构信息

Department of Behavioral and Community Health Sciences, Graduate School of Public Health, University of Pittsburgh, A 214 Crabtree Hall, Pittsburgh, PA 15261, USA.

出版信息

J Cross Cult Gerontol. 2009 Sep;24(3):291-306. doi: 10.1007/s10823-009-9097-7.

DOI:10.1007/s10823-009-9097-7
PMID:19340567
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC2755064/
Abstract

Using a combined qualitative/quantitative approach, we interviewed 132 older African-Americans and whites with either osteoarthritis of the hip or knee (OAK/OAH) or ischemic heart disease (IHD) to address two questions: 1) What types of reactions to illness are expressed by this group of older adults who have OA or IHD? 2)? Are there differences in the characteristics of the respondents who respond more positively than those who respond more negatively? The responses were coded to illustrate those that reflected positive, negative, or combined (positive/negative) statements. The majority of the respondents, who were categorized as positive or combined, approached the illness experience with statements illustrating their ability to cope with their illness and adapt their lifestyles to the limitations imposed by the disease such as acceptance, feeling that others were worse off, or changing their lifestyles to adapt to their limitations. Those expressing negative reactions to their illness were fewer in number and responded with terms reflecting loss of identity, physical limitations, and other disease symptoms. The differences were more pronounced between the positive and negative groups where the latter were somewhat more likely to be African-American and female and significantly more likely to have less income, greater perceived disease severity, and more disability. We should look to the larger group in both the positive only and combined responses to explore how culture may play a role in perceptions of subjective well-being and the importance of "the local worlds of experience" experienced by both men and women, and African-Americans and whites. This study illustrates that using a simple, open-ended question that stimulates older people to narrate their reactions to having a chronic illness may allow clinicians to identify the persons most at-risk and intervene appropriately.

摘要

我们采用定性与定量相结合的方法,对132名患有髋部或膝部骨关节炎(OAK/OAH)或缺血性心脏病(IHD)的非裔美国老年人和白人进行了访谈,以回答两个问题:1)这群患有骨关节炎或缺血性心脏病的老年人表达了哪些类型的疾病反应?2)反应较为积极的受访者与反应较为消极的受访者在特征上是否存在差异?对这些回答进行编码,以说明那些反映积极、消极或混合(积极/消极)陈述的内容。大多数被归类为积极或混合类型的受访者在谈及患病经历时,表达了他们应对疾病以及根据疾病所带来的限制调整生活方式的能力,比如接受现实、觉得别人情况更糟,或者改变生活方式以适应自身限制。那些对疾病表达消极反应的人较少,他们的回答反映了身份丧失、身体限制和其他疾病症状。积极组和消极组之间的差异更为明显,消极组中非洲裔美国人和女性的比例略高,收入较低、感知到的疾病严重程度更高以及残疾情况更严重的可能性显著更大。我们应该关注那些仅给出积极回答以及混合回答的较大群体,以探究文化如何在主观幸福感认知以及男性和女性、非裔美国人和白人所经历的“当地经验世界”的重要性方面发挥作用。这项研究表明,使用一个简单的开放式问题来促使老年人讲述他们对患有慢性病的反应,可能会让临床医生识别出风险最高的人群并进行适当干预。

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引用本文的文献

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