Saalasti-Koskinen Ulla, Mäkelä Marjukka, Saarenmaa Irma, Autti-Rämö Ilona
National Institute for Health and Welfare/Finnish Office for Health Technology Assessment, Helsinki, Finland.
Acad Radiol. 2009 May;16(5):546-50. doi: 10.1016/j.acra.2009.02.002.
Women who are invited for breast cancer screening should get enough information about the benefits and harms of screening to make an informed decision on participation. Personal invitations are an important source of information, because all invited women receive them. The objective of this study was to evaluate the information breast cancer screening units send to women invited for screening in Finland.
A questionnaire was sent to all breast cancer screening units in Finland in 2005 and 2008, and the information (eg, invitations, results letters, leaflets) the units sent to women was collected. Results from 2005 were sent as feedback to the units. Data were analyzed descriptively, and results from the 2 years were compared.
Screening units sent personal invitation letters usually providing fixed appointment times. Most units informed about participation free of charge and the benefits of detecting breast cancer early. Harm associated with screening was seldom mentioned; no unit mentioned the possibility of false-negative results or overtreatment.
The screening units provided very variable information, which often was biased toward optimizing participation. The high participation rate (approximately 88%) in Finland may be due partly to the prescriptive nature of the invitation letters. National templates for information letters would be useful.
受邀参加乳腺癌筛查的女性应获得足够的关于筛查利弊的信息,以便就是否参与做出明智的决定。个人邀请函是重要的信息来源,因为所有受邀女性都会收到。本研究的目的是评估芬兰乳腺癌筛查单位发送给受邀筛查女性的信息。
2005年和2008年向芬兰所有乳腺癌筛查单位发送了一份问卷,并收集各单位发送给女性的信息(如邀请函、结果信、传单)。2005年的结果作为反馈发送给各单位。对数据进行描述性分析,并比较这两年的结果。
筛查单位发送的个人邀请函通常提供固定的预约时间。大多数单位告知免费参与以及早期发现乳腺癌的益处。很少提及与筛查相关的危害;没有单位提及假阴性结果或过度治疗的可能性。
筛查单位提供的信息差异很大,且往往倾向于鼓励参与。芬兰较高的参与率(约88%)可能部分归因于邀请函的规范性。全国性的信息信模板会很有用。