Stancliffe Roger J, Lakin K Charlie, Taub Sarah, Chiri Giuseppina, Byun Soo-Yong
Faculty of Health Sciences, University of Sydney, Sydney, Australia.
Intellect Dev Disabil. 2009 Apr;47(2):63-83. doi: 10.1352/1934-9556-47.2.63.
Self-reported satisfaction and sense of well-being were assessed in a sample of 1,885 adults with intellectual and developmental disabilities receiving Medicaid Home and Community Based Services (HCBS) and Intermediate Care Facility (ICF/MR) services in 6 states. Questions dealt with such topics as loneliness, feeling afraid at home and in one's neighborhood, feeling happy, feeling that staff are nice and polite, and liking one's home and work/day program. Loneliness was the most widespread problem, and there were also small percentages of people who reported negative views in other areas. Few differences were evident by HCBS and ICF/MR status. The findings document consistent benefits of residential support provided in very small settings-with choices of where and with whom to live-and to individuals living with family.
在6个州，对1885名接受医疗补助家庭和社区服务（HCBS）以及中级护理机构（ICF/MR）服务的成年智力和发育障碍患者进行了抽样调查，以评估他们自我报告的满意度和幸福感。问题涉及孤独感、在家中和邻里间感到害怕、感到快乐、觉得工作人员友善礼貌，以及喜欢自己的家和工作/日间项目等主题。孤独感是最普遍的问题，也有一小部分人在其他方面表达了负面看法。按HCBS和ICF/MR状态来看，差异不明显。研究结果证明了在非常小的环境中提供住宿支持的持续益处——包括选择居住地点和同住人员——以及对与家人同住的个人的益处。
