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儿童人工耳蜗植入中的健康差异:听力学视角

Health disparities in pediatric cochlear implantation: an audiologic perspective.

作者信息

Kirkham Erin, Sacks Chana, Baroody Fuad, Siddique Juned, Nevins Mary Ellen, Woolley Audie, Suskind Dana

机构信息

University of Chicago, Pritzker School of Medicine, Chicago, Illinois, USA.

出版信息

Ear Hear. 2009 Oct;30(5):515-25. doi: 10.1097/AUD.0b013e3181aec5e0.

Abstract

OBJECTIVES

A national survey of pediatric cochlear implantation (PCI) audiologists was conducted with three aims: (1) to determine if PCI audiologists perceive within their clinical practice a negative effect of low socioeconomic status (SES) on postimplant speech and language outcomes; (2) to understand their perceptions of the underlying factors leading to outcome disparities; and (3) to elicit suggestions for improving outcomes in disadvantaged populations. We hypothesized that audiologists would perceive reduced speech and language outcomes within their lower SES patient population, and that this noted disparity would be related to parental adherence (compliance) and access to habilitation.

DESIGN

A survey containing 22 quantitative and open-ended questions was electronically mailed to a data base of 234 PCI audiologists. Forty-four percent (N = 103 of 234) responded to the survey, with the majority (98 of 103) answering all questions. Quantitative responses were analyzed using the Stata 9 statistical package with significance at p < 0.05. Qualitative responses were analyzed using standardized codebook and content analysis. Transcripts were read and coded for the main ideas expressed in each response. The codes were then analyzed for patterns and organized into subthemes that were then grouped into themes.

RESULTS

Seventy-eight percent (N = 76 of 98) of respondents perceived an effect of SES on postimplant speech and language outcomes. Qualitative responses uniformly demonstrated audiologists' perception that lower SES patient populations were more likely to experience reduced speech and language outcomes. Two major themes emerged in audiologists' explanations of SES-related disparities: internal factors of parental influence (i.e., parental self-efficacy, adherence, and habilitation carryover), and external factors (i.e., inadequate therapy and lack of available resources). Three primary suggestions were offered for reducing the disparity: improvement in cochlear implant services (92%), increased emphasis on parental education and intervention (87%), and the development of stricter candidacy requirements (15%).

CONCLUSIONS

This study offers evidence to show that PCI audiologists note an SES-related disparity in the field of PCI. Respondents suggest the need for a broad and culturally sensitive effort to both increase access to qualified healthcare professionals and develop approaches that will aid parents in the at-home habilitation process.

摘要

目的

对儿科人工耳蜗植入(PCI)听力学家进行了一项全国性调查,有三个目标:(1)确定PCI听力学家在其临床实践中是否察觉到社会经济地位(SES)低对植入后言语和语言结果有负面影响;(2)了解他们对导致结果差异的潜在因素的看法;(3)征求改善弱势群体结果的建议。我们假设听力学家会察觉到其SES较低的患者群体的言语和语言结果较差,并且这种明显的差异与家长的依从性(顺从性)和获得康复治疗的机会有关。

设计

一份包含22个定量和开放式问题的调查问卷通过电子邮件发送给了一个有234名PCI听力学家的数据库。44%(234人中的103人)回复了调查,其中大多数(103人中的98人)回答了所有问题。定量回复使用Stata 9统计软件包进行分析,显著性水平为p < 0.05。定性回复使用标准化编码手册和内容分析进行分析。阅读转录本并对每个回复中表达的主要观点进行编码。然后分析这些代码以找出模式,并组织成子主题,再将子主题分组为主题。

结果

78%(98人中的76人)的受访者察觉到SES对植入后言语和语言结果有影响。定性回复一致表明听力学家认为SES较低的患者群体更有可能出现言语和语言结果较差的情况。听力学家对与SES相关差异的解释中出现了两个主要主题:家长影响的内部因素(即家长的自我效能感、依从性和康复治疗的延续性)和外部因素(即治疗不足和缺乏可用资源)。为减少差异提出了三个主要建议:改善人工耳蜗植入服务(92%)、更加强调家长教育和干预(87%)以及制定更严格的候选资格要求(15%)。

结论

本研究提供的证据表明,PCI听力学家注意到PCI领域存在与SES相关的差异。受访者建议需要做出广泛且具有文化敏感性的努力,以增加获得合格医疗保健专业人员的机会,并制定有助于家长在家中进行康复治疗的方法。

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