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后基因组时代的护理倡导

Nursing advocacy in a postgenomic age.

作者信息

Hamilton Rebekah

机构信息

Department of Women, Children and Family Health Science (MC 802), College of Nursing, University of Illinois at Chicago, Chicago, IL 60612, USA.

出版信息

Nurs Clin North Am. 2009 Dec;44(4):435-46. doi: 10.1016/j.cnur.2009.07.007.

DOI:10.1016/j.cnur.2009.07.007
PMID:19850180
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC2766592/
Abstract

The Human Genome Project will change how health is defined and how disease is prevented, diagnosed, and treated. As the largest group of health care providers in contact with patients, nurses need to be competent in the science of genetics. Beyond this, nurses need to understand the complexities that arise in genomic health care. Ethical, legal, and social issues are integral to the delivery of genomic health care, and nurses must have an astute understanding of such complexities. What it means to know, to reason, and to act in this postgenomic age is explored.

摘要

人类基因组计划将改变健康的定义方式以及疾病的预防、诊断和治疗方式。作为与患者接触的最大医疗服务提供者群体,护士需要精通遗传学科学。除此之外,护士还需要理解基因组医疗中出现的复杂性。伦理、法律和社会问题是基因组医疗服务不可或缺的一部分,护士必须敏锐地理解这些复杂性。本文探讨了在这个后基因组时代,知识、推理和行动意味着什么。

相似文献

1
Nursing advocacy in a postgenomic age.后基因组时代的护理倡导
Nurs Clin North Am. 2009 Dec;44(4):435-46. doi: 10.1016/j.cnur.2009.07.007.
2
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Paediatr Nurs. 2004 Jul-Aug;16(6):26-9. doi: 10.7748/paed2004.07.16.6.26.c930.
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Ethics and genetics: implications for CNS practice.伦理学与遗传学:对中枢神经系统实践的影响
Clin Nurse Spec. 2004 Sep-Oct;18(5):228-31. doi: 10.1097/00002800-200409000-00004.
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J Prof Nurs. 2005 Mar-Apr;21(2):103-13. doi: 10.1016/j.profnurs.2005.01.001.
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Cancer genetics: the importance of obtaining a family history.癌症遗传学:获取家族病史的重要性。
Nurs Times. 2006;102(40):28-9.
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Genetics: is it part of your role?遗传学:它是你职责的一部分吗?
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Genetics & genomics: what every oncology nurse needs to know.遗传学与基因组学:每位肿瘤护理人员都应了解的知识。
ONS Connect. 2011 Feb;26(2):8-12.
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Nursing leadership in genomics for health and society.基因组学护理领导力促进健康与社会发展。
J Nurs Scholarsh. 2005;37(2):102-10. doi: 10.1111/j.1547-5069.2005.00021.x.
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The role of home healthcare nurses in high-risk cancer screening.家庭保健护士在高危癌症筛查中的作用。
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Mapping the human genome: psychosocial impacts and implications for nursing.绘制人类基因组图谱:对护理的社会心理影响及启示
Can J Nurs Res. 2006 Jun;38(2):115-22.

本文引用的文献

1
Using The Essentials of Baccalaureate Education for Professional Nursing Practice (2008) as a framework for curriculum revision.以《本科护理教育基础》(2008)为课程修订框架。
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Clinical review: the genetics of type 2 diabetes: a realistic appraisal in 2008.临床综述:2型糖尿病的遗传学:2008年的实际评估
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ASHG Statement* on direct-to-consumer genetic testing in the United States.美国人类遗传学会关于美国直接面向消费者的基因检测的声明*
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6
The Theory of Genetic Vulnerability: a Roy model exemplar.遗传易感性理论:一个罗伊模型示例。
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7
Establishing the essential nursing competencies for genetics and genomics.确立遗传学和基因组学的基本护理能力。
J Nurs Scholarsh. 2007;39(1):10-6. doi: 10.1111/j.1547-5069.2007.00137.x.
8
The genetic epidemiology of neurodegenerative disease.神经退行性疾病的遗传流行病学
J Clin Invest. 2005 Jun;115(6):1449-57. doi: 10.1172/JCI24761.
9
Communication about genetic testing in families of male BRCA1/2 carriers and non-carriers: patterns, priorities and problems.男性BRCA1/2基因携带者和非携带者家庭中基因检测的沟通:模式、重点与问题
Clin Genet. 2005 Jun;67(6):492-502. doi: 10.1111/j.1399-0004.2005.00443.x.
10
Disclosing genetic test results to family members.向家庭成员披露基因检测结果。
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