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母亲们在接受咨询后对其子女遗传疾病病因的看法。

Mothers' postcounseling beliefs about the causes of their children's genetic disorders.

作者信息

Weil J

机构信息

Program in Genetic Counseling, School of Public Health, University of California, Berkeley 94720.

出版信息

Am J Hum Genet. 1991 Jan;48(1):145-53.

Abstract

Mothers' postcounseling beliefs about the causes of their children's genetic disorders were investigated by means of a Q-sort consisting of 54 statements of possible beliefs that were sorted into nine groups of six items each on the basis of congruence with the subject's beliefs. The subjects were well educated, knowledgeable about the genetics of their child's disorder, and indicated a high level of belief in genetic causes. Differences in beliefs were associated with differences in genetic etiology, indicating that beliefs were affected by the specific information provided in genetic counseling. Factor analysis identified a cluster of Q-sort items characterized by a highly personal relationship to the cause of the disorder (e.g., personal attributes, being selected and blessed, and God's actions). Subjects who rated these items low had a belief pattern, designated impersonal, that was consistent with a scientific worldview and that indicated psychological distancing from the cause of the child's disorder. Subjects who rated these items high, the personal belief pattern, had a mixture of scientific and nonscientific beliefs that indicated a sense of personal involvement in the cause of the child's disorder. Subjects with the two belief patterns were equally knowledgeable about the genetics of the disorder. Thus, the personal belief pattern did not appear to interfere with acceptance or understanding of the information provided in genetic counseling.

摘要

通过一种Q分类法,对母亲们在接受咨询后关于其子女遗传疾病病因的信念进行了调查。该Q分类法由54条关于可能信念的陈述组成,这些陈述根据与受试者信念的一致性被分成九组,每组六项。受试者受过良好教育,了解其子女疾病的遗传学知识,并表示高度相信遗传病因。信念上的差异与遗传病因的差异相关,这表明信念受到遗传咨询中提供的具体信息的影响。因子分析确定了一组Q分类项目,其特征是与疾病病因有着高度的个人关联(例如,个人特质、被选中与受祝福以及上帝的行为)。对这些项目评分较低的受试者有一种信念模式,称为非个人化模式,该模式与科学世界观一致,并表明在心理上与子女疾病的病因保持距离。对这些项目评分较高的受试者,即个人信念模式,具有科学信念和非科学信念的混合,这表明他们觉得自己与子女疾病的病因有个人关联。具有这两种信念模式的受试者对疾病遗传学的了解程度相同。因此,个人信念模式似乎并未干扰对遗传咨询中提供信息的接受或理解。

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