Department of Pediatrics and Program in Bioethics, University of California, Davis, Sacramento, CA 95817, USA.
Semin Perinatol. 2009 Dec;33(6):377-83. doi: 10.1053/j.semperi.2009.07.005.
Despite advances in the care of infants, there remain many newborns whose medical conditions are incompatible with sustained life. At times, healthcare providers and parents may agree that prolonging life is not an appropriate goal of care, and they may redirect treatment to alleviate suffering. While pediatric palliative treatment protocols are gaining greater acceptance, there remain some children whose suffering is unrelenting despite maximal efforts. Due to the realization that some infants suffer unbearably (ie, the burdens of suffering outweigh the benefits of life), the Dutch have developed a protocol for euthanizing these newborns. In this review, I examine the ethical aspects of 6 forms of end of life care, explain the ethical arguments in support of euthanasia, review the history and verbiage of the United States regulations governing limiting and withdrawing life-prolonging interventions in infants, describe the 3 categories of neonates for whom the Dutch provide euthanasia, review the published analyses of the Dutch protocol, and finally present some practical considerations should some form of euthanasia ever be deemed appropriate.
尽管婴儿护理方面取得了进步,但仍有许多新生儿的身体状况不适合维持生命。有时,医疗保健提供者和家长可能会同意,延长生命不是护理的适当目标,他们可能会调整治疗以减轻痛苦。尽管儿科姑息治疗方案越来越被接受,但仍有一些儿童尽管尽了最大努力,仍在遭受无法缓解的痛苦。由于认识到有些婴儿遭受难以忍受的痛苦(即,痛苦的负担超过生命的好处),荷兰制定了一项为这些新生儿实施安乐死的协议。在这篇综述中,我探讨了 6 种临终关怀形式的伦理方面,解释了支持安乐死的伦理论点,回顾了美国有关限制和撤回延长婴儿生命干预措施的法规的历史和措辞,描述了荷兰提供安乐死的 3 类新生儿,审查了荷兰协议的已发表分析,最后提出了一些实际考虑因素,如果某种形式的安乐死被认为是适当的。