Department of Educational and Counselling Psychology, McGill University, Montreal, Québec, Canada.
Palliat Support Care. 2009 Dec;7(4):501-12. doi: 10.1017/S1478951509990514.
Women are largely responsible for providing care to terminally ill family members at home. The goal of this review is to conceptualize diverse women's experiences in palliative home care from feminist, multicultural, and social justice perspectives.
Peer-reviewed manuscripts were identified using the following databases: CIMAHL, psycINFO, and pubMED. The following search terms were used: women/mothers/daughters, Caregiving, family caregivers, feminism, culture, multiculturalism, and palliative home care. Article reference lists were also reviewed. The majority of penitent articles which formed the basis for the arguments presented were drawn from nursing, medicine, and counseling psychology scholarship.
The application of feminist, multicultural, and social justice theory brings to attention several potential issues female caregivers may experience. First, there exist diverse ways in which women's Caregiving is manifested that tend to correspond with variations in culture, relationship, and age. Second, it is important to attend to changing expectations placed on women as a result of Caregiving at the end of life. Third, the changing power dynamics women may experience in end of life Caregiving are very complex.
The principle finding of the review was the highlighting of potential risks that culturally diverse female caregivers are likely to face at the end of life. The application of social justice theory provides a number of implications for practice and policy. Specifically, the identifying significant concerns regarding female caregivers in palliative home care, as well as suggesting ways to appropriately attend to these concerns, and oppression of women is less likely to be perpetuated, specific areas for future research in this domain are identified.
女性在家中主要负责照顾临终的家庭成员。本综述的目的是从女性主义、多元文化和社会正义的角度来理解不同女性在姑息治疗家庭护理中的体验。
使用 CIMAHL、psycINFO 和 pubMED 数据库确定同行评审的手稿。使用了以下搜索词:女性/母亲/女儿、照顾、家庭照顾者、女性主义、文化、多元文化和姑息治疗家庭护理。还审查了文章的参考文献列表。形成提出论点基础的大多数主要文章来自护理、医学和咨询心理学奖学金。
女性主义、多元文化和社会正义理论的应用引起了女性照顾者可能经历的几个潜在问题的关注。首先,女性照顾的表现方式存在多样性,往往与文化、关系和年龄的变化相对应。其次,重要的是要关注由于临终关怀而对女性的期望发生变化。第三,女性在临终关怀中可能经历的权力动态变化非常复杂。
综述的主要发现是强调了文化多元化的女性照顾者在临终时可能面临的潜在风险。社会正义理论的应用为实践和政策提供了一些启示。具体而言,确定姑息治疗家庭护理中女性照顾者的重大关切,并提出适当关注这些关切的方法,可以减少对女性的压迫,确定该领域未来研究的具体领域。