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用于多发性硬化症患者的家庭自动化远程管理系统的设计与实现

Design and implementation of Home Automated Telemanagement system for patients with multiple sclerosis.

作者信息

Finkelstein Joseph, Wood Jeffrey

机构信息

Chronic Disease Informatics Program, Johns Hopkins University, USA.

出版信息

Annu Int Conf IEEE Eng Med Biol Soc. 2009;2009:6091-4. doi: 10.1109/IEMBS.2009.5334948.

DOI:10.1109/IEMBS.2009.5334948
PMID:19965257
Abstract

We developed a Home Automated Telemanagement (HAT) system for the computer-guided management of patients with multiple sclerosis(MS) to monitor patient symptoms, educate patients on their disease, and to instruct and monitor an exercise regimen tailored to the patient's specific needs. The home unit runs on a laptop computer connected to a phone line in the patient's home. The system questions the patient on their condition, gives detailed step by step exercise instructions, records their exercise compliance, then informs and quizzes the patient on their knowledge of multiple sclerosis. Their exercise regimen is determined by their physical therapist and integrated into the system, keeping a personalized approach to disease management while taking advantage of the convenience the technology supplies. This telemanagement system has been successfully designed and implemented to optimize the care of patients with multiple sclerosis.

摘要

我们开发了一种家庭自动化远程管理(HAT)系统,用于对多发性硬化症(MS)患者进行计算机引导管理,以监测患者症状、对患者进行疾病教育,并指导和监测根据患者特定需求定制的锻炼方案。家庭单元运行在患者家中连接到电话线的笔记本电脑上。该系统询问患者的病情,给出详细的逐步锻炼指导,记录他们的锻炼依从性,然后就多发性硬化症的知识对患者进行告知和测验。他们的锻炼方案由物理治疗师确定并整合到系统中,在利用技术提供的便利的同时,保持针对疾病管理的个性化方法。这个远程管理系统已成功设计并实施,以优化对多发性硬化症患者的护理。

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J Neurol. 2025 Jan 7;272(1):96. doi: 10.1007/s00415-024-12749-8.
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The Use of Digital and Remote Communication Technologies as a Tool for Multiple Sclerosis Management: Narrative Review.数字和远程通信技术作为多发性硬化症管理工具的应用:叙述性综述
JMIR Rehabil Assist Technol. 2018 Apr 24;5(1):e5. doi: 10.2196/rehab.7805.
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Rehabilitation interventions in multiple sclerosis: an overview.
多发性硬化症的康复干预措施:概述。
J Neurol. 2012 Sep;259(9):1994-2008. doi: 10.1007/s00415-012-6577-4. Epub 2012 Jul 8.