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[儿童向成人过渡期间患者的照护连续性——儿科医生的视角]

[Care continuity for patients during transition from childhood to adulthood--the perspective of pediatrician].

作者信息

Kubota Masaya

机构信息

Division of Neurology, National Center for Child Health and Development.

出版信息

Nihon Rinsho. 2010 Jan;68(1):145-50.

PMID:20077808
Abstract

To promote the effective transition, that is, "the purposeful, planned movement of adolescents and young adults with chronic neurological conditions from child-centered to adult-oriented health care system," we should consider the following requirements in Japan. 1. The transition program must be settled as a comprehensive and individualized system in disease-specific and severity-oriented manners to cover the age-dependent sequelae and developmental issues. 2. We should not regard the patient (family) resistance to transition as a barrier, rather esteem of the personal bond between child neurologist and patient (family) is the key factor to facilitate the long-term follow-up. 3. We must make a system for the participation of various occupational categories (social worker and nurse practitioner, etc.) other than the doctor in the transition program. 4. The child neurologist should take an active part as the specialist of lifelong neurology and coordinator that promotes the transition program.

摘要

为促进有效过渡,即“患有慢性神经疾病的青少年和青年从以儿童为中心的医疗保健系统有目的地、有计划地转向以成人为主导的医疗保健系统”,我们在日本应考虑以下要求。1. 过渡计划必须以针对特定疾病和严重程度的方式确定为一个全面且个性化的系统,以涵盖与年龄相关的后遗症和发育问题。2. 我们不应将患者(家庭)对过渡的抵触视为障碍,相反,重视儿童神经科医生与患者(家庭)之间的个人纽带是促进长期随访的关键因素。3. 我们必须建立一个让医生以外的各类职业(社会工作者和执业护士等)参与过渡计划的系统。4. 儿童神经科医生应作为终身神经学专家和促进过渡计划的协调者积极参与。

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