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利用非专业教育工作者克服与老年黑人进行研究的障碍:一项使用阿尔茨海默病中心的案例研究。

Use of lay educators to overcome barriers to research with Black older adults: a case study using Alzheimer's Disease Center.

作者信息

Souder Elaine, Terry Tanya Laws

机构信息

College of Nursing, University of Arkansas for Medical Sciences, Little Rock, AR, USA.

出版信息

Res Gerontol Nurs. 2009 Oct;2(4):235-42. doi: 10.3928/19404921-20090731-04. Epub 2009 Oct 27.

DOI:10.3928/19404921-20090731-04
PMID:20077978
Abstract

There are many well-documented barriers to recruitment of Black participants in clinical research. This is of concern in Alzheimer's disease (AD) research because of the escalating rate of AD in this group, the increasing proportion of minority groups, and their low rate of research participation. Our Alzheimer's Disease Center (ADC) Black Advisory Board recommended we try a lay educator (LE) approach to bridge the gap between the community and university-based research center. As a result, our LE program contributed to a significant increase in the number of AD presentations given to the Black community. Although the number of Black participants enrolled in our ADC program increased from 12% to 25%, the process was challenging. However, the LE program led to significant progress in our efforts to meet our enrollment expectations, fostered links between the university and the Black community, and furthered our understanding of the barriers created by our recruiting practices.

摘要

在临床研究中,招募黑人参与者存在许多有充分记录的障碍。在阿尔茨海默病(AD)研究中,这一情况令人担忧,因为该群体中AD发病率不断上升,少数群体比例不断增加,而他们的研究参与率却很低。我们的阿尔茨海默病中心(ADC)黑人咨询委员会建议我们尝试采用外行人教育者(LE)的方法来弥合社区与大学研究中心之间的差距。因此,我们的LE项目促使面向黑人社区进行的AD讲座数量大幅增加。尽管参与我们ADC项目的黑人参与者数量从12%增加到了25%,但这个过程充满挑战。然而,LE项目使我们在实现招募预期方面取得了重大进展,促进了大学与黑人社区之间的联系,并加深了我们对招募做法所造成障碍的理解。

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