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囊性纤维化青少年的心理发展与青春期、身高及疾病严重程度的关系

Psychological development as related to puberty, body height and severity of illness in adolescents with cystic fibrosis.

作者信息

Sinnema G, Van der Laag H, Stoop J W

机构信息

University Hospital for Children and Youth, Het Wilhelmina Kinderziekenhuis, Utrecht, The Netherlands.

出版信息

Isr J Med Sci. 1991 Apr;27(4):186-91.

PMID:2010270
Abstract

The interrelations between delayed puberty, small stature, severity of illness and psychological development were studied in 64 adolescents with cystic fibrosis (CF). The study included 36 adolescents with asthma bronchiale, 47 adolescents with small stature (height less than 25th percentile) and 71 healthy controls with a height greater than or equal to 25th percentile. All adolescents and the parents of 40 youngsters with CF had extensive personal interviews. Eight aspects of independence and related aspects of self-perception were measured. In CF, delayed puberty and small stature were clearly correlated with less participation in some social activities, a lesser degree of ideal-formation and a less positive body attitude. Small stature appeared to have the same effects in healthy adolescents. Severity of illness in CF and asthma played a role of secondary importance. In general, the perceptions of parents were similar to or slightly more pessimistic than the self-perceptions of their CF children. The need for psychosexual counselling and training in social skills for adolescents with CF is stressed.

摘要

对64名患有囊性纤维化(CF)的青少年的青春期延迟、身材矮小、疾病严重程度和心理发展之间的相互关系进行了研究。该研究纳入了36名支气管哮喘青少年、47名身材矮小(身高低于第25百分位数)的青少年以及71名身高大于或等于第25百分位数的健康对照者。所有青少年以及40名患有CF的青少年的父母都进行了广泛的个人访谈。对独立性的八个方面以及自我认知的相关方面进行了测量。在CF患者中,青春期延迟和身材矮小明显与较少参与某些社交活动、较低的理想形成程度以及不太积极的身体态度相关。身材矮小在健康青少年中似乎也有同样的影响。CF和哮喘的疾病严重程度起次要作用。总体而言,父母的认知与他们患有CF的孩子的自我认知相似或略为悲观。强调了对患有CF的青少年进行性心理咨询和社交技能培训的必要性。

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