Kahana Eva, Kahana Boaz, Wykle May, Kulle Diana
J Fam Soc Work. 2009 Apr 1;12(2):168-193. doi: 10.1080/10522150902874834.
This paper offers a stress theory based conceptual framework for understanding proactive options for care-getting for patients living with cancer that is also relevant to patients living with other chronic or life threatening illnesses. Barriers and facilitators to active efforts for obtaining responsive care from both informal and formal sources are discussed. This "Care-Getting" model explores benefits of proactive care-getting for diminishing physical discomfort/suffering, burden of illness and disability, and psychological distress. We highlight unique issues in care-getting that patients face at different stages of the life course. Implications of prior research related to the model for practice and intervention are discussed.
本文提供了一个基于压力理论的概念框架,用于理解癌症患者获得主动护理的积极选择,这一框架也适用于患有其他慢性或危及生命疾病的患者。文中讨论了从非正式和正式渠道积极努力获得响应性护理的障碍和促进因素。这个“获得护理”模型探讨了主动获得护理在减轻身体不适/痛苦、疾病负担和残疾以及心理困扰方面的益处。我们强调了患者在生命历程不同阶段面临的获得护理方面的独特问题。还讨论了先前与该模型相关的研究对实践和干预的启示。