Kourrouski Maria Fernanda Cabral, Lima Regina Aparecida Garcia de
Hospital das Clínicas, Faculdade de Medicina de Ribeirão Preto, Universidade de São Paulo, Brazil.
Rev Lat Am Enfermagem. 2009 Nov-Dec;17(6):947-52. doi: 10.1590/s0104-11692009000600004.
Living with a chronic condition is difficult at any stage of life, especially when considering HIV/AIDS, a stigmatized condition that elicits so much discrimination and which may become an aggravating factor when it occurs during adolescence. This study aimed to understand the experience of adolescents with HIV/AIDS concerning medication adherence. This is a descriptive study with a qualitative approach. Nine adolescents aged between 12 and 18 years and six caregivers participated in the study. The organization of data focused on positive and negative aspects related to adherence. The results showed that adolescents have difficulties in medication adherence especially due to their side effects; they try to normalize their lives in such a way that stigma and discrimination do not compromise their quality of life and treatment adherence. Recommendations to encourage treatment adherence are presented.
在人生的任何阶段，患有慢性疾病都很艰难，尤其是考虑到艾滋病毒/艾滋病这种备受污名化的疾病，它会引发诸多歧视，而且在青少年时期发病时可能会成为一个加剧因素。本研究旨在了解感染艾滋病毒/艾滋病的青少年在药物依从性方面的经历。这是一项采用定性方法的描述性研究。九名年龄在12至18岁之间的青少年和六名照料者参与了该研究。数据整理聚焦于与依从性相关的积极和消极方面。结果表明，青少年在药物依从性方面存在困难，尤其是因为药物的副作用；他们试图以一种让污名和歧视不会影响其生活质量和治疗依从性的方式使自己的生活正常化。文中还提出了鼓励治疗依从性的建议。
