Mino Jean-Christophe, Frattini Marie-Odile
Palliative Care Unit, Pitié Salpêtrière Medical School Hospital, and National Center of Resources for Palliative Care FX Bagnoud, 6 avenue Lemierre, 75980 Paris Cedex 20, France.
J Palliat Care. 2009 Winter;25(4):257-63.
In France, the government's plan to combat Alzheimer's disease takes into consideration mostly the beginnings of the disease; it does not deal with the sufferers' end of life. For this pathology, the very idea of a palliative care phase and its definition are not straightforward.
The object of this qualitative study was to clarify this idea through a series of interviews with 44 professionals.
The study describes three successive phases in the disease trajectory, revealed by changes in the logic of care: the stimulation phase, the chronic palliative care phase, and the terminal palliative phase.
Alzheimer's disease has a specific phase of chronic palliative care. It presents, for professionals, several types of problems related to communication, pain, and feeding.
在法国，政府对抗阿尔茨海默病的计划主要考虑的是疾病的初期阶段；并未涉及患者生命末期的情况。对于这种病症而言，姑息治疗阶段及其定义并非一目了然。
这项定性研究的目的是通过对44名专业人员进行一系列访谈来阐明这一概念。
该研究描述了疾病发展轨迹中的三个连续阶段，这些阶段通过护理逻辑的变化得以揭示：刺激阶段、慢性姑息治疗阶段和终末期姑息阶段。
阿尔茨海默病有一个特定的慢性姑息治疗阶段。对专业人员来说，它存在与沟通、疼痛和喂食相关的几种问题类型。
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