Sahlgrenska University Hospital, Department of Oncology, Clinical Trial Unit, Gothenburg, Sweden.
Palliat Support Care. 2010 Mar;8(1):59-68. doi: 10.1017/S147895150999071X. Epub 2010 Feb 18.
The objective of this study was to explore health care staff's opinions about what existential issues are important to patients with cancer and staff's responsibility when existential issues are raised by patients.
Four focus group interviews were conducted with health care staff (N = 23) at an in-patient hospice, on an oncology ward, on a surgical ward, and with a palliative home health care team. The focus group interviews focused on two questions, first, about health care staff's opinions about patients' important existential questions and, second, about health care staff's responsibility when existential issues are raised by the patient. The interviews were tape-recorded, transcribed verbatim, and analyzed by qualitative content analysis into subcategories and categories.
Four categories and 11 subcategories emerged from the first question. The first category, "life and death," was based on joy of living and thoughts of dying. The second category "meaning," consisted of acceptance, reevaluation, hope, and faith. The third category, "freedom of choice," consisted of responsibility and integrity, and the fourth and last category, "relationships and solitude," consisted of alleviation, dependency, and loss. One category emerged from the second question about the health care staff's responsibility, "to achieve an encounter," which was based on the subcategories time and space, attitudes, and invitation and confirmation.
The strength of this study was that the findings were fairly congruent in different settings and in different geographical areas. Health care staff were aware of the importance of existential issues to patients. The existential issues, mentioned by health care staff, are similar to findings from studies conducted among patients, which is another strength of the present study. Health care staff are also confident about how to act when these issues are raised by the patients. The challenge for the future is to implement the findings from this study among health care staff in different settings.
本研究旨在探讨医护人员对癌症患者重要生存问题的看法,以及患者提出生存问题时医护人员应承担的责任。
在一家住院临终关怀病房、一家肿瘤病房、一家外科病房和一家姑息治疗家庭保健团队中,对 23 名医护人员进行了 4 次焦点小组访谈。访谈重点关注两个问题,一是医护人员对患者重要生存问题的看法,二是患者提出生存问题时医护人员应承担的责任。访谈进行了录音,并逐字记录下来,然后采用定性内容分析法进行分析,形成亚类和类目。
第一个问题产生了四个类别和十一个亚类。第一个类别是“生与死”,基于对生活的乐趣和对死亡的思考。第二个类别是“意义”,包括接受、重新评估、希望和信念。第三个类别是“选择的自由”,包括责任和正直,最后一个类别是“关系和孤独”,包括缓解、依赖和失落。第二个问题关于医护人员的责任,产生了一个类别“实现相遇”,它基于时间和空间、态度以及邀请和确认等亚类。
本研究的一个优势在于,研究结果在不同的环境和地理区域都相当一致。医护人员意识到生存问题对患者的重要性。医护人员提到的生存问题与在患者中进行的研究结果相似,这也是本研究的另一个优势。医护人员对如何在患者提出这些问题时采取行动也很有信心。未来的挑战是在不同环境的医护人员中实施本研究的发现。