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生活被打乱,身份受到威胁:诊断后一年内结直肠癌患者的经历。

Disrupted lives and threats to identity: the experiences of people with colorectal cancer within the first year following diagnosis.

机构信息

Cancer Care Research Centre, Stirling University Innovation Park, Stirling, FK9 4NF, UK.

出版信息

Health (London). 2010 Mar;14(2):131-46. doi: 10.1177/1363459309353294.

Abstract

In this article we focus on the experiences of 18 people with colorectal cancer, involved in a large longitudinal qualitative study to explore people's experiences of cancer within the first year following diagnosis. Three depth interviews over the course of the year were carried out. During analysis, we drew on biographically informed approaches of understanding chronic illness, particularly the work of Bury and Charmaz, to explore the extent to which people within the first year following diagnosis experience cancer as biographically disruptive. We explore the biographical work that individuals carry out in the context of an assault on their identity and discuss the relevance of the concept biographical disruption for people who experience cancer as an acute, chronic and/or life-threatening condition. We also discuss the concept's relevance for people who have lived a hard life and, hence, may anticipate these types of disruptions in their lives and experience their impact differently. We conclude that universal application of the concept biographical disruption to the experience of cancer within the first year of diagnosis is not appropriate. This study has implications for cancer services, in particular, the findings call for the development of interventions to support those people who experience cancer as an assault on their identity.

摘要

本文聚焦于 18 名结直肠癌患者的经历,他们参与了一项大型纵向定性研究,旨在探讨人们在诊断后第一年的癌症经历。在这一年中进行了三次深度访谈。在分析过程中,我们借鉴了理解慢性病的传记式方法,特别是 Bury 和 Charmaz 的工作,探讨了在多大程度上,诊断后第一年的人将癌症视为具有传记性的破坏。我们探讨了个体在身份受到攻击的情况下所进行的传记工作,并讨论了传记性破坏这一概念对于那些将癌症视为急性、慢性和/或危及生命的状况的人的相关性。我们还讨论了这个概念对于那些生活艰难的人的相关性,因此,他们可能会预料到生活中的这些破坏,并以不同的方式体验其影响。我们的结论是,将传记性破坏这一概念普遍应用于诊断后第一年的癌症经历是不合适的。这项研究对癌症服务具有重要意义,特别是研究结果呼吁开发干预措施,以支持那些将癌症视为对其身份的攻击的人。

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