Brent Sickle Cell and Thalassaemia Centre, Imperial College School of Medicine, Central Middlesex Hospital, London, NW10 7NS, UK.
Global Health. 2010 Feb 20;6:2. doi: 10.1186/1744-8603-6-2.
Sickle Cell Disorder is a global health problem with psychosocial implications. Nigeria has the largest population of people with sickle cell disorder, with about 150,000 births annually. This study explored the psychosocial impact of sickle cell disorder in 408 adolescents and adults attending three hospitals in Lagos, Nigeria. A questionnaire was designed for the study, with some of commonly described areas of psychosocial impact including general public perceptions and attitudes, education, employment, and healthcare issues, and emotional responses.The majority of participants thought that society in general had a negative image of SCD, and reported negative perceptions and attitudes. Some issues in education, employment, and healthcare were expressed, however these were in the minority of cases. The results also showed that depressive feelings were experienced in almost half the study population, even though feelings of anxiety or self-hate were uncommon. Clinical implications of these findings are considered.
镰状细胞病是一个具有社会心理影响的全球性健康问题。尼日利亚拥有最大的镰状细胞病患者群体，每年约有 150,000 例新生儿。本研究探讨了在尼日利亚拉各斯的三家医院就诊的 408 名青少年和成年人中镰状细胞病的社会心理影响。研究设计了一份问卷，其中包括一些常见的社会心理影响领域，如公众认知和态度、教育、就业和医疗保健问题以及情绪反应。大多数参与者认为，社会普遍对 SCD 存在负面形象，并报告了负面的认知和态度。在教育、就业和医疗保健方面也存在一些问题，但这些问题在少数情况下存在。研究结果还表明，近一半的研究人群都有抑郁感，尽管焦虑或自我厌恶的感觉并不常见。考虑了这些发现的临床意义。
