电子邮件和照片：电子通信时代患者自主诊断工具的案例报告。
E-mail and photographs: a case report of a patient-initiated diagnostic tool in the era of electronic communication.
机构信息
Department of Oncology, Mayo Clinic, Rochester, Minnesota 55905, USA.
出版信息
J Palliat Med. 2010 Mar;13(3):335-7. doi: 10.1089/jpm.2009.0215.
Abstract
This case report reviews some of the clinical aspects of epidermal growth factor receptor (EGFR) inhibitor-induced rash, and, more importantly, it describes a specific case in which the diagnosis of such a rash occurred by means of a patient-initiated photographic electronic communication. The fact that this electronic communication was patient-initiated suggests that health care providers will likely be asked to make clinical decisions based on this type of communication soon and that this type of seemingly low-cost approach will likely become an important aspect of cancer symptom control and palliative care in the future.
摘要
本病例报告回顾了表皮生长因子受体（EGFR）抑制剂引起皮疹的一些临床方面，更重要的是，它描述了一个具体的病例，其中该皮疹的诊断是通过患者发起的电子通讯照片进行的。该电子通讯是由患者发起的这一事实表明，医疗保健提供者可能很快就会被要求根据这种类型的通讯做出临床决策，而且这种看似低成本的方法很可能成为未来癌症症状控制和姑息治疗的一个重要方面。
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2
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