Clinical Research Institute, Mie-chuo Medical Center, National Hospital Organization, Tsu, Japan.
J Epidemiol. 2010;20 Suppl 2(Suppl 2):S407-12. doi: 10.2188/jea.je20090165. Epub 2010 Feb 23.
We investigated the feasibility and validity of and systematized the methods used to enroll and retain participants requiring long-term interdisciplinary collaborations. We carried out this study in the Sukusuku cohort, Mie (SCM), as one of the regional research site of Japan Children's Study (JCS).
A total of 467 families who were screened between December 1, 2004 and December 31, 2005, in the Mie-chuo Medical Center and 2 other hospitals; these families were deemed eligible for the study. Of these, a total of 185 families (39.6%) participated in the 4-month observation. Of these families, 5 dropped out at month 9 of the observation; 9, at month 18; 17, at month 30; and 5, at month 42. The retention rates at 9, 18, 30, and 42 months of observation were 97.3%, 92.4%, 83.2%, and 80.5%, respectively. Reinstatement to a previous job was the most common reason for dropouts.
We observed that informative consultation notes during observation were beneficial for the retention of participants, and these notes also helped in improving communication between the study subjects and the evaluators during subsequent visits.
In this study, we did not perform the standard checks for child development alone but also investigated the motivating influence of research partnerships with participants. Further, these visits help maintain the motivation levels of the participants and encourage them to contribute for social causes. The results present integration models that can be applied in future relevant longitudinal cohort studies in Japan.
我们研究了招募和保留需要长期跨学科合作的参与者的可行性和有效性，并对所采用的方法进行了系统整理。我们在 Mie（SCM）的 Sukusuku 队列中开展了这项研究，该队列是日本儿童研究（JCS）的区域研究基地之一。
共有 467 个家庭参加了 2004 年 12 月 1 日至 2005 年 12 月 31 日在 Mie-chuo 医疗中心和另外 2 家医院进行的筛查，这些家庭被认为符合研究条件。其中，共有 185 个家庭（39.6%）参加了为期 4 个月的观察。在这些家庭中，有 5 个家庭在观察第 9 个月退出，9 个家庭在第 18 个月退出，17 个家庭在第 30 个月退出，5 个家庭在第 42 个月退出。观察第 9、18、30 和 42 个月时的保留率分别为 97.3%、92.4%、83.2%和 80.5%。重新就业是退出的最常见原因。
我们观察到，观察期间的详细咨询记录有助于参与者的保留，并且这些记录还帮助改善了研究对象和评估人员在随后访问期间的沟通。
在这项研究中，我们不仅进行了儿童发育的标准检查，还调查了与参与者合作的研究关系的激励影响。此外，这些访问有助于维持参与者的积极性，并鼓励他们为社会事业做出贡献。这些结果提供了可以应用于日本未来相关纵向队列研究的综合模型。
