我们共同照顾:家庭照顾者对其年长亲属接受家庭支持服务的体验。

We share the care: family caregivers' experiences of their older relative receiving home support services.

机构信息

Department of Sociology, University of British Columbia, 6303 NW Marine Drive, Vancouver, BC, Canada.

出版信息

Health Soc Care Community. 2010 Jul;18(4):415-23. doi: 10.1111/j.1365-2524.2010.00913.x. Epub 2010 Mar 18.

Abstract

Although both family care and home support are considered essential components of home-based health-care, the experiences of family caregivers who have a relative in receipt of home support services are not well understood. Little is known about what aspects of home support services assist family caregivers or hinder them in their caregiving. This study examines family member's experiences of the home support services received by their elderly relatives. Based on a previous Canadian study of contributions in family caregiving, we developed a conceptual model for understanding multiple contributions in caregiving. The present study used this conceptual model to guide the analysis of data from in-depth interviews with family caregivers (N = 52), completed August 2007-April 2008, who have or had an older relative in receipt of home support services in British Columbia, Canada, in the previous 12 months. Verbatim transcripts were read, re-read and independently coded by three members of the research team to identify common themes. Themes relating to direct care (care provided directly to the elderly person) and assistive care (care provided to one caregiver by another) were identified. In discussing the direct care provided by workers, family members emphasised dissatisfaction with instrumental assistance provided by home support workers while also stressing the importance of affective assistance. In commenting about assistive care there were three key themes: caring together, care management, and quality assurance and monitoring. In conclusion, the important role of home support in providing relief for caregivers is highlighted and implications for caregiver policy are discussed.

摘要

尽管家庭护理和家庭支持都被认为是家庭医疗保健的重要组成部分,但接受家庭支持服务的家庭成员的护理经验却鲜为人知。人们对家庭支持服务的哪些方面有助于护理人员,或者哪些方面阻碍了他们的护理工作知之甚少。本研究考察了家庭成员对其老年亲属所接受的家庭支持服务的体验。基于之前一项关于家庭护理贡献的加拿大研究,我们为理解护理中的多重贡献制定了一个概念模型。本研究使用该概念模型来指导对 2007 年 8 月至 2008 年 4 月期间接受过或接受过不列颠哥伦比亚省家庭支持服务的 52 名家庭护理人员(N=52)的深入访谈数据的分析,这些护理人员的老年亲属在过去 12 个月内接受过家庭支持服务。研究团队的三名成员逐字阅读、反复阅读并独立对转录本进行编码,以确定共同主题。确定了与直接护理(直接提供给老年人的护理)和辅助护理(其他护理人员为一名护理人员提供的护理)相关的主题。在讨论工人提供的直接护理时,家庭成员强调对家庭支持工作者提供的工具性援助不满意,同时强调情感援助的重要性。在评论辅助护理时,有三个关键主题:共同护理、护理管理以及质量保证和监督。总之,强调了家庭支持在为护理人员提供缓解方面的重要作用,并讨论了对护理人员政策的影响。

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