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互联网和信息技术在糖尿病治疗中的应用。

Internet and information technology use in treatment of diabetes.

作者信息

Kaufman N

机构信息

UCLA School of Medicine, Los Angeles, CA 90025, USA.

出版信息

Int J Clin Pract Suppl. 2010 Feb(166):41-6. doi: 10.1111/j.1742-1241.2009.02277.x.

Abstract

This chapter contains clinical studies and reviews of the state-of-the-art regarding how information technology can help improve outcomes for patients with diabetes through enhanced education and support. With the increasing sophistication of diabetes treatment protocols and diabetes-related devices this new modality offers a remarkable opportunity for clinicians and patients. For the first time, with online tools clinicians are in a position to have a major impact on diabetes outcomes by providing robust and affordable just-in-time support to large numbers of patients who want to improve their diabetes outcomes through enhanced self-management of the complex behaviours so essential for good outcomes. Patients with diabetes often need a complex set of services and support ranging from glucose monitoring, insulin and other medication management, psychotherapy and social support, to physical activity promotion, nutrition counselling and more. Integrating these supports into a patient's therapeutic regimen presents challenges that need to be addressed through a variety of strategies. Patient self-management of diabetes enabled by information technology is becoming an important factor in the way providers deliver healthcare. Approaches using information technology to support clinical services are being dramatically altered by the confluence of several trends. * Patients want an active role in managing their own health and a collaborative relationship with their healthcare providers. * Widespread, low-cost internet access is erasing existing geographic, economic and demographic barriers to obtaining health information online, and with advanced Web 2.0 technologies high levels of interactivity can engage the patient. * Clinicians and researchers now have a deeper understanding of how people learn and respond online, and that knowledge can be crafted into solutions that produce effective, long-term behaviour change. Technology enabled approaches that show great promise to improve outcomes use new models of service provision in which technology enabled self-management support (SMS) provides patients with * just-in-time delivery of tailored messages and experience that speak to each person based on their unique characteristics, their performance on key behaviours and their needs at that moment in time; * ways to easily and accurately keep track of their performance and use that knowledge to plan and implement new approaches to reaching their goals; * ways to link directly to family and friends for critical support, and to link to their many providers to help integrate medical care with everyday life. Online tools can extend health practices and provide this support through cost-effective programmes that help clinicians guide their patients to better manage their diabetes. The best internet self-management education and support programmes are rich in pertinent content, provide engaging interactive elements, and offer a tailored, personalised learning experience. They contain self-assessment tools and ways for the individual to monitor performance and changes in biological measurements such as blood sugar, insulin dosage, physical activity, weight, blood pressure and mood. The patient can access their information, input their data, and receive support 24 h a day - at a time and place most convenient for them, and not limited to clinicians' office hours. Web-based learning and support technology benefits both clinician and patient; patients learn to overcome barriers and to self-document activities and interactions, permitting clinician review and feedback at any time. In addition to automating much of the educational content, this time shifting element is one of the keys to making the process efficient and low cost. The ability to perform an automated review of the patient's activities and performance also provides the clinician with a valuable tool that increases both effectiveness and efficiency. As with online intervention, a 'virtual coach' can provide individualised guidance and support based on readily available analyses of each patient's characteristics and performance. In addition, the clinician can communicate frequently and efficiently, offering personalised email support to each patient without requiring in-person meetings, as well as monitor 'virtual support groups' where patients interact with others online via informational chat rooms and blogs. By incorporating web-based patient self-management and support into traditional treatment methods, one clinician can effectively support many patients - one patient at a time.

摘要

本章包含了关于信息技术如何通过加强教育和支持来帮助改善糖尿病患者治疗效果的临床研究和最新综述。随着糖尿病治疗方案和糖尿病相关设备日益复杂,这种新方式为临床医生和患者提供了一个绝佳机会。首次地,借助在线工具,临床医生能够通过为大量希望通过加强对复杂行为的自我管理来改善糖尿病治疗效果的患者提供强大且经济实惠的即时支持,从而对糖尿病治疗结果产生重大影响。糖尿病患者通常需要一系列复杂的服务和支持,从血糖监测、胰岛素及其他药物管理、心理治疗和社会支持,到促进身体活动、营养咨询等等。将这些支持整合到患者的治疗方案中存在诸多挑战,需要通过多种策略来解决。信息技术使能的糖尿病患者自我管理正成为医疗服务提供者提供医疗保健方式中的一个重要因素。利用信息技术支持临床服务的方法正因多种趋势的融合而发生巨大改变。

  • 患者希望在管理自身健康方面发挥积极作用,并与医疗服务提供者建立合作关系。

  • 广泛且低成本的互联网接入正在消除获取在线健康信息的现有地理、经济和人口障碍,借助先进的Web 2.0技术,高水平的交互性能够吸引患者参与。

  • 临床医生和研究人员现在对人们如何在线学习和做出反应有了更深入的理解,并且可以将这些知识转化为能够产生有效长期行为改变的解决方案。有很大前景改善治疗效果的技术使能方法采用了新的服务提供模式,其中技术使能的自我管理支持(SMS)为患者提供:

  • 根据每个人的独特特征、关键行为表现以及当时的需求即时提供量身定制的信息和体验;

  • 轻松准确地跟踪自身表现并利用这些知识来规划和实施实现目标的新方法;

  • 直接与家人和朋友联系以获得关键支持,并与众多医疗服务提供者联系以帮助将医疗护理与日常生活相结合的方式。在线工具可以扩展健康实践,并通过具有成本效益的项目提供这种支持,帮助临床医生指导患者更好地管理糖尿病。最佳的互联网自我管理教育和支持项目内容丰富且相关,提供引人入胜的互动元素,并提供量身定制的个性化学习体验。它们包含自我评估工具以及个人监测诸如血糖、胰岛素剂量、身体活动、体重、血压和情绪等生物测量指标的表现及变化的方法。患者可以随时访问自己的信息、输入数据,并在一天24小时内最方便自己的时间和地点获得支持,而不仅限于临床医生的办公时间。基于网络的学习和支持技术对临床医生和患者都有益;患者学会克服障碍并自我记录活动和互动情况,以便临床医生随时进行审查和反馈。除了使许多教育内容自动化之外,这种时间转移元素是使该过程高效且低成本的关键之一。对患者活动和表现进行自动审查的能力也为临床医生提供了一个有价值的工具,提高了有效性和效率。与在线干预一样,“虚拟教练”可以根据对每个患者特征和表现的现成分析提供个性化指导和支持。此外,临床医生可以频繁且高效地沟通,在无需面对面会议的情况下为每个患者提供个性化电子邮件支持,还可以监测“虚拟支持小组”,患者通过信息聊天室和博客在其中与他人进行在线互动。通过将基于网络的患者自我管理和支持纳入传统治疗方法,一名临床医生可以有效地一次支持多名患者。

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