Ross Carolyn Jean Mary, Williams Beverly A, Low Gail, Vethanayagam Dilini
Faculty of Nursing, University of Alberta, Edmonton, Alberta, Canada T6G 2G3.
J Asthma. 2010 Apr;47(3):330-6. doi: 10.3109/02770901003611462.
The purpose of this study was to explore the perceptions about self-management among people who were being followed up in a severe asthma clinic by asthma specialists for confirmed, overall severe asthma. Such insight informs how best to tailor programs for this difficult to treat patient population.
In-depth tape-recorded interviews of eight adults with severe asthma were transcribed and analyzed for salient themes using content analysis.
To self-manage their illness, over time participants sought asthma information from a variety of sources that they often viewed as inadequate due to lack of scope and or plain language. The most valued sources of asthma information were encountered after referral to an asthma specialist and were health professionals and a pulmonary rehabilitation program.
There is a need to examine the content of asthma information sources for their relevance to and influence on the behavior of patients with severe asthma.
本研究旨在探讨在严重哮喘诊所接受哮喘专家随访的确诊为重度哮喘患者对自我管理的看法。此类见解有助于了解如何为这一难以治疗的患者群体量身定制最佳方案。
对八名重度哮喘成年患者进行深入的录音访谈,转录访谈内容并采用内容分析法分析其中的显著主题。
为了自我管理疾病,随着时间推移,参与者从各种来源获取哮喘信息,但他们常常认为这些来源因范围有限或表述不够通俗易懂而不尽人意。最有价值的哮喘信息来源是在转诊至哮喘专家后获得的,包括医疗专业人员和肺部康复项目。
有必要检查哮喘信息来源的内容,看其与重度哮喘患者行为的相关性及对患者行为的影响。