Kent State University, Department of Lifespan Development and Educational Sciences, P.O. Box 5190, 150 Terrace Drive, Kent, OH 44242, USA.
Lang Speech Hear Serv Sch. 2010 Oct;41(4):474-87. doi: 10.1044/0161-1461(2010/09-0007). Epub 2010 Apr 26.
This study was designed to evaluate the feasibility of using the American Speech-Language-Hearing Association's Quality of Communication Life Scale (QCL; Paul et al., 2004) for a group of individuals with developmental communication disorders--adolescents with high-functioning autism/Asperger syndrome (HFA/AS). Perceptions of quality of communication life (QoCL) have not been studied in this group and are important for intervention planning.
Fourteen adolescents with HFA/AS and 15 typically developing peers rated their QoCL using the QCL. Mothers of study participants also rated their children's QoCL. It was hypothesized that the adolescents with HFA/AS would rate their QoCL less positively than their peers and more positively than their mothers.
The QoCL ratings of adolescents with HFA/AS were significantly lower than those of their peers but were generally positive. Self-ratings for the HFA/AS group were somewhat higher than parent ratings.
The results of this study provide evidence that adolescents with HFA/AS can effectively evaluate aspects of their QoCL and that the QCL may provide useful information for this group. The study also provides preliminary evidence that adolescents with HFA/AS rate their QoCL lower than their peers. Further research is necessary to better understand the meaning of lower ratings for this group and the effects of intervention on their perceptions of their QoCL.
本研究旨在评估美国言语语言听力协会的沟通生活质量量表(QCL;Paul 等人,2004)在一组发育性沟通障碍个体——高功能自闭症/阿斯伯格综合征(HFA/AS)青少年中的应用可行性。这一群体的沟通生活质量(QoCL)感知尚未得到研究,对于干预计划很重要。
14 名 HFA/AS 青少年和 15 名典型发展同伴使用 QCL 对他们的 QoCL 进行了评分。研究参与者的母亲也对他们孩子的 QoCL 进行了评分。研究假设 HFA/AS 青少年对 QoCL 的评分会低于同龄人但高于母亲。
HFA/AS 青少年的 QoCL 评分明显低于同龄人,但总体上呈积极趋势。HFA/AS 组的自我评分略高于家长评分。
本研究结果提供了证据表明,HFA/AS 青少年能够有效地评估他们 QoCL 的各个方面,并且 QCL 可能为这一群体提供有用的信息。该研究还初步表明,HFA/AS 青少年对 QoCL 的评分低于同龄人。需要进一步研究以更好地理解这一群体较低评分的含义,以及干预对他们 QoCL 感知的影响。