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患有阿斯伯格综合征或高功能自闭症的学龄儿童家长的健康相关生活质量。

Health-related quality of life in parents of school-age children with Asperger Syndrome or High-Functioning Autism.

作者信息

Allik Hiie, Larsson Jan-Olov, Smedje Hans

机构信息

Karolinska Institutet, Dept. of Woman and Child Health, Astrid Lindgren Children's Hospital, SE-171 76 Stockholm, Sweden.

出版信息

Health Qual Life Outcomes. 2006 Jan 4;4:1. doi: 10.1186/1477-7525-4-1.

Abstract

BACKGROUND

The estimated prevalence rate of Pervasive Developmental Disorders (PDD) in children is 6 per 1.000. Parenting children who are intellectually impaired and have PDDs is known to be linked to the impaired well-being of the parents themselves. However, there is still little available data on health-related quality of life (HRQL) in parents of children with Asperger Syndrome (AS) and High-Functioning Autism (HFA), or other PDD diagnoses in children of normal intelligence. The present study aimed to evaluate aspects of HRQL in parents of school-age children with AS/HFA and the correlates with child behaviour characteristics.

METHODS

The sample consisted of 31 mothers and 30 fathers of 32 children with AS/HFA and 30 mothers and 29 fathers of 32 age and gender matched children with typical development. Parental HRQL was surveyed by the use of the 12 Item Short Form Health Survey (SF-12) which measures physical and mental well-being. The child behaviour characteristics were assessed using the structured questionnaires: The High-Functioning Autism Spectrum Screening Questionnaire (ASSQ) and The Strengths and Difficulties Questionnaire (SDQ).

RESULTS

The mothers of children with AS/HFA had lower SF-12 scores than the controls, indicating poorer physical health. The mothers of children with AS/HFA also had lower physical SF-12 scores compared to the fathers. In the AS/HFA group, maternal health was related to behaviour problems such as hyperactivity and conduct problems in the child.

CONCLUSION

Mothers but not fathers of children with AS/HFA reported impaired HRQL, and there was a relationship between maternal well-being and child behaviour characteristics.

摘要

背景

儿童广泛性发育障碍(PDD)的估计患病率为千分之六。众所周知,抚养智力受损且患有PDD的儿童与父母自身的幸福感受损有关。然而,关于阿斯伯格综合征(AS)和高功能自闭症(HFA)患儿的父母或智力正常儿童的其他PDD诊断的父母的健康相关生活质量(HRQL)的现有数据仍然很少。本研究旨在评估AS/HFA学龄儿童父母的HRQL方面及其与儿童行为特征的相关性。

方法

样本包括32名AS/HFA儿童的31名母亲和30名父亲,以及32名年龄和性别匹配的发育正常儿童的30名母亲和29名父亲。通过使用12项简短健康调查(SF-12)来调查父母的HRQL,该调查测量身心健康。使用结构化问卷评估儿童行为特征:高功能自闭症谱系筛查问卷(ASSQ)和长处与困难问卷(SDQ)。

结果

AS/HFA儿童的母亲的SF-12得分低于对照组,表明身体健康状况较差。与父亲相比,AS/HFA儿童的母亲的身体SF-12得分也较低。在AS/HFA组中,母亲的健康与儿童的多动和行为问题等行为问题有关。

结论

AS/HFA儿童的母亲而非父亲报告HRQL受损,并且母亲的幸福感与儿童行为特征之间存在关联。

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