Regenstrief Institute, Inc and Indiana University School of Informatics, Indianapolis, Indiana 46202, USA.
J Am Med Inform Assoc. 2010 May-Jun;17(3):295-301. doi: 10.1136/jamia.2009.000570.
The nationwide health information network (NHIN) has been proposed to securely link community and state health information exchange (HIE) entities to create a national, interoperable network for sharing healthcare data in the USA. This paper describes a framework for evaluating the costs, effort, and value of nationwide data exchange as the NHIN moves toward a production state. The paper further presents the results of an initial assessment of the framework by those engaged in HIE activities.
Using a literature review and knowledge gained from active NHIN technology and policy development, the authors constructed a framework for evaluating the costs, effort, and value of data exchange between an HIE entity and the NHIN.
An online survey was used to assess the perceived usefulness of the metrics in the framework among HIE professionals and researchers.
The framework is organized into five broad categories: implementation; technology; policy; data; and value. Each category enumerates a variety of measures and measure types. Survey respondents generally indicated the framework contained useful measures for current and future use in HIE and NHIN evaluation. Answers varied slightly based on a respondent's participation in active development of NHIN components.
The proposed framework supports efforts to measure the costs, effort, and value associated with nationwide data exchange. Collecting longitudinal data along the NHIN's path to production should help with the development of an evidence base that will drive adoption, create value, and stimulate further investment in nationwide data exchange.
全美卫生信息网络(NHIN)旨在安全连接社区和州卫生信息交换(HIE)实体,以创建一个可互操作的全国性医疗数据共享网络。本文描述了一个评估全国数据交换成本、工作量和价值的框架,该框架是 NHIN 向生产状态推进的一部分。本文进一步介绍了参与 HIE 活动的人员对该框架的初步评估结果。
利用文献综述和从 NHIN 技术和政策开发中获得的知识,作者构建了一个用于评估 HIE 实体与 NHIN 之间数据交换成本、工作量和价值的框架。
采用在线调查评估 HIE 专业人员和研究人员对框架中指标的感知有用性。
该框架分为五个广泛的类别:实施、技术、政策、数据和价值。每个类别列举了各种度量标准和度量类型。调查受访者普遍表示,该框架包含了当前和未来在 HIE 和 NHIN 评估中有用的度量标准。根据受访者对 NHIN 组件的积极开发的参与程度,答案略有不同。
所提出的框架支持衡量与全国数据交换相关的成本、工作量和价值的努力。沿着 NHIN 的生产路径收集纵向数据,应该有助于开发一个证据基础,推动采用、创造价值,并进一步刺激全国数据交换的投资。