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本文引用的文献

1
The next step in health data exchanges: trust and privacy in exchange networks.健康数据交换的下一步:交换网络中的信任与隐私
J Healthc Inf Manag. 2009 Spring;23(2):33-7.
2
Understanding the decisions and values of stakeholders in health information exchanges: experiences from Massachusetts.了解健康信息交换中利益相关者的决策和价值观:来自马萨诸塞州的经验
Am J Public Health. 2009 May;99(5):950-5. doi: 10.2105/AJPH.2008.144873. Epub 2009 Mar 19.
3
U.S. Regional health information organizations: progress and challenges.美国地区卫生信息组织:进展与挑战。
Health Aff (Millwood). 2009 Mar-Apr;28(2):483-92. doi: 10.1377/hlthaff.28.2.483.
4
Embracing change in a health information exchange.在健康信息交换中拥抱变革。
AMIA Annu Symp Proc. 2008 Nov 6;2008:768-72.
5
The MidSouth eHealth Alliance: use and impact in the first year.中南部电子健康联盟:第一年的使用情况及影响
AMIA Annu Symp Proc. 2008 Nov 6;2008:333-7.
6
A regional health information exchange: architecture and implementation.区域卫生信息交换:架构与实现
AMIA Annu Symp Proc. 2008 Nov 6;2008:212-6.
7
Community-wide implementation of health information technology: the Massachusetts eHealth Collaborative experience.社区范围内健康信息技术的实施:马萨诸塞州电子健康协作项目的经验
J Am Med Inform Assoc. 2009 Jan-Feb;16(1):132-9. doi: 10.1197/jamia.M2899. Epub 2008 Oct 24.
8
Formative evaluation: a critical component in EHR implementation.形成性评估:电子健康记录实施中的关键组成部分。
J Am Med Inform Assoc. 2008 May-Jun;15(3):297-301. doi: 10.1197/jamia.M2584. Epub 2008 Feb 28.
9
The state of regional health information organizations: current activities and financing.区域卫生信息组织的现状:当前活动与资金筹措
Health Aff (Millwood). 2008 Jan-Feb;27(1):w60-9. doi: 10.1377/hlthaff.27.1.w60. Epub 2007 Dec 11.
10
Playing smallball: approaches to evaluating pilot health information exchange systems.打小球策略:评估试点健康信息交换系统的方法
J Biomed Inform. 2007 Dec;40(6 Suppl):S21-6. doi: 10.1016/j.jbi.2007.08.006. Epub 2007 Sep 1.

评估全国范围健康信息交换的成本、投入和价值的框架。

A Framework for evaluating the costs, effort, and value of nationwide health information exchange.

机构信息

Regenstrief Institute, Inc and Indiana University School of Informatics, Indianapolis, Indiana 46202, USA.

出版信息

J Am Med Inform Assoc. 2010 May-Jun;17(3):295-301. doi: 10.1136/jamia.2009.000570.

DOI:10.1136/jamia.2009.000570
PMID:20442147
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC2995720/
Abstract

OBJECTIVE

The nationwide health information network (NHIN) has been proposed to securely link community and state health information exchange (HIE) entities to create a national, interoperable network for sharing healthcare data in the USA. This paper describes a framework for evaluating the costs, effort, and value of nationwide data exchange as the NHIN moves toward a production state. The paper further presents the results of an initial assessment of the framework by those engaged in HIE activities.

DESIGN

Using a literature review and knowledge gained from active NHIN technology and policy development, the authors constructed a framework for evaluating the costs, effort, and value of data exchange between an HIE entity and the NHIN.

MEASUREMENT

An online survey was used to assess the perceived usefulness of the metrics in the framework among HIE professionals and researchers.

RESULTS

The framework is organized into five broad categories: implementation; technology; policy; data; and value. Each category enumerates a variety of measures and measure types. Survey respondents generally indicated the framework contained useful measures for current and future use in HIE and NHIN evaluation. Answers varied slightly based on a respondent's participation in active development of NHIN components.

CONCLUSION

The proposed framework supports efforts to measure the costs, effort, and value associated with nationwide data exchange. Collecting longitudinal data along the NHIN's path to production should help with the development of an evidence base that will drive adoption, create value, and stimulate further investment in nationwide data exchange.

摘要

目的

全美卫生信息网络(NHIN)旨在安全连接社区和州卫生信息交换(HIE)实体,以创建一个可互操作的全国性医疗数据共享网络。本文描述了一个评估全国数据交换成本、工作量和价值的框架,该框架是 NHIN 向生产状态推进的一部分。本文进一步介绍了参与 HIE 活动的人员对该框架的初步评估结果。

设计

利用文献综述和从 NHIN 技术和政策开发中获得的知识,作者构建了一个用于评估 HIE 实体与 NHIN 之间数据交换成本、工作量和价值的框架。

测量

采用在线调查评估 HIE 专业人员和研究人员对框架中指标的感知有用性。

结果

该框架分为五个广泛的类别:实施、技术、政策、数据和价值。每个类别列举了各种度量标准和度量类型。调查受访者普遍表示,该框架包含了当前和未来在 HIE 和 NHIN 评估中有用的度量标准。根据受访者对 NHIN 组件的积极开发的参与程度,答案略有不同。

结论

所提出的框架支持衡量与全国数据交换相关的成本、工作量和价值的努力。沿着 NHIN 的生产路径收集纵向数据,应该有助于开发一个证据基础,推动采用、创造价值,并进一步刺激全国数据交换的投资。