爱尔兰的大疱性表皮松解症护理。

Care of epidermolysis bullosa in Ireland.

机构信息

National EB Service, St James' Hospital, Dublin, Ireland.

出版信息

Dermatol Clin. 2010 Apr;28(2):397-9, xiv. doi: 10.1016/j.det.2010.02.017.

DOI:10.1016/j.det.2010.02.017

PMID:20447512

Abstract

Advances in the medical care of epidermolysis bullosa (EB) have led to the development of National Service Centers for EB in many countries worldwide. The exemplary model of care to children and adults with EB in the United Kingdom, combined with the knowledge that people with EB were travelling to the United Kingdom for treatment, encouraged the development of the Irish national service. Dystrophic Epidermolysis Bullosa Research Association of Ireland, founded in 1988 played a pivotal role in this development.

摘要

在治疗大疱性表皮松解症（EB）方面的医学进展，促使全球许多国家建立了 EB 国家服务中心。英国为 EB 患儿和成人提供的典范式护理模式，以及人们前往英国接受治疗的事实，推动了爱尔兰国家服务的发展。1988 年成立的爱尔兰营养不良性大疱性表皮松解症研究协会在这一发展过程中发挥了关键作用。