法国的大疱性表皮松解症：国家遗传性皮肤病参考中心的管理。

Epidermolysis bullosa in France: management in the National Reference Center for Genodermatosis.

机构信息

Department of Dermatology, Necker Enfants Malades Hospital, APHP Paris 75015, France.

出版信息

Dermatol Clin. 2010 Apr;28(2):401-3, xiv. doi: 10.1016/j.det.2010.02.007.

DOI:10.1016/j.det.2010.02.007

PMID:20447513

Abstract

For more than 20 years, the department of dermatology in the Necker Enfants Malades Hospital (Paris) has been organizing the coordination of an epidermolysis bullosa-specific multidisciplinary management. The French Ministry of Health distinguished this hospital as a reference center for rare diseases. MAGEC-Necker now aims to offer the best medical and social management of epidermolysis bullosa.

摘要

20 多年来，巴黎 Necker 儿童医院皮肤科一直在组织协调特定于大疱性表皮松解症的多学科管理。法国卫生部将该医院指定为罕见病的参考中心。MAGEC-Necker 现在旨在为大疱性表皮松解症提供最佳的医疗和社会管理。